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Pudendal Nerve Entrapment/Neuropathy/Damage
Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)Comment receiving replies
Just joined the group this minute. I suffered from this problem since my late teens but it became worse as I got older. I had surgical procedure for nerve entrapment in my ankle but had no idea what this pain was from since it was never the same kind or in the same place - just in any place that was usually covered with underwear. In 2016, after suffering and being unable to sit for more than 15 minutes at a time, a Pain Specialist suggested that it was a GYN problem & suggested a few diagnostic tests. I'm an RN but knew nothing about this so I went online & found a gynecologist who specializes in minimally-invasive gynecology. After listening carefully to my history & nodding without interruption, she attempted to examine me but it was too painful. She scheduled an exam with light sedation & did a Pudendal block test:& Pudendal motor latency test. Once they were positive, she scheduled me for regular blocks & pelvic PT. It's a chronic condition but it is being managed pretty well now. I stopped taking Gabapentin or any other pills in 2016.
Replies to "Just joined the group this minute. I suffered from this problem since my late teens but..."
I am having trigger point injections with sedation in a few weeks. It’s Botox to relax the pelvic floor
Not sure it will help but I want to try
Has anyone tried Botox trigger point injections?
Not sure why no doctor offers me the pudendal nerve block
If this does not help I will ask for the block
I don’t know anyone helped by gabapentin and it caused me amnesia ( horrible!! )
Don’t take it!
Just yesterday I screamed twice when I felt the shooting pain you know where
Had it for twenty years
Added to trigeminal neuralgia and rheumatoid arthritis I get the work ups haha
I have pain pump for TN but does not help the pelvis and Humira and methotrexate for RA
I still survive
Meditation WORKS!
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Hello @marjorielyn1, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your experience and what has helped you. It's good to hear that you have it pretty well managed even though it's a chronic condition.
Do you have any other suggestions you can share with members that has helped you?