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DiscussionParalyzed right side of diaphragm: How to treat?
Lung Health | Last Active: Mar 20, 2023 | Replies (20)Comment receiving replies
Replies to "The right side of my diaphragm is parylized. Having the phrenic nerve looked at next month..."
August 2021 I was diagnosed with a elevated right diaphragm, after suffering from extreme shortness of breath for previous months. After much testing, radiological, neuro, and pulmonology my diagnoses was paralysis of right diaphragm. My local neurologist did a nerve conduction study on the right phrenic nerve, the was no response/reaction. Most of the local doctors didn’t have a clue how to treat me. They would tell me things like even though my right lung was collapsed, ly left lung should compensate. I couldn’t even walk across my house without stopping to rest/breath. I began to do my research about possible treatments. My pulmonologist recommended waiting 12 months before seeking surgical treatment, even though I was having to use oxygen and couldn’t really do any activity plus had to use a Trilogy ventilator at night. I did not wait and contacted the Mayo Clinic after researching plication surgery. I went to Jacksonville FL Mayo Clinic, spent a week getting numerous tests completed and then was referred to Dr Ian Mackey, cardio thoracic surgeon at Mayo Clinic Jacksonville. He reviewed all of my tests and once he looked at my pulmonary function studies gave me the option of plication surgery. I had plication of right diaphragm March 4, 2022, this was robotically assisted laparoscopic surgery. I have four 1-2” scars that are now barely visible. I honestly can not say enough about the progress I have made since surgery. I am 6 months post op and my activity has been slowly but steadily progressing. Once I got past the first three weeks of no lifting, then three months of no lifting over 10 pounds, my progress has been amazing. Currently I am able to walk/hike 4-7 miles, I’m back at gym and lifting weights (carefully) and I’m able to run/jog 30min at a time. The quality of my life has improved beyond what I thought I was capable of with only one lung/diaphragm working. I am one blessed 53 year old lady!! I’m open to any questions