@irene5, I would have to agree with your statement Irene. How are you doing now? You are number one on my mind.

@boomerexpert, It could be that the mac is morphing into a stronger bug.

Thanks. You are kind! My mom always said, “if you don’t have anything good to say, don’t say anything at all.” So I try not to burden people. My doctor and I had a discussion about that just the other day. It is hard for me to go from caregiver to being taken care of- I hate it! The big three is not a walk in the park, but I am determined to persevere. I was recently registered for medical marijuana. I haven’t used any yet - so not a party animal! 🙂 I also don’t like my children worrying so much, because that’s my job - to worry about them. The good news is I try to stay positive and set a goal to do one thing everyday, even if it’s only a small thing. And when you have ten kids, thirteen grand babies, three German shepherds, a black and a yellow lab not to mention a caring albeit not so well husband - well, lonely I will never be! Thanks for asking! I have faith that someday we will all be cured! 🙂

Don't know the reason b/c too little research being done...there's much "they don't know" and many docs complicit in keeping it that way via apathy

Agreed! And what is up with that? I wouldn’t wish this on my worst enemy, but if one of them had this they might be a little less apathetic. My doctors have all been very concerned though. I think they are stuck between a rock and a hard place with funding not to mention lack of documentation with the CDC.

The only way we will get this pushed is to find a famous person that has this I guess. Or find a famous person to be an advocate. Maybe a parent or sibling had it. Or one of us needs to win the lottery or do something to become famous.

I'm working on the latter...Publisher's Clearinghouse Sweepstakes...

@irene5 That's what I assumed. The key is the "susceptible host". And we certainly are. I think TB is contagious because someone with TB can give it to another without getting it directly from the environment (water, soil, etc). MAC doesn't go from person to person. Anybody who is susceptible can get it independent of another person as long as the environment is there. That is my understanding of it.

You better win

That’s funny! I waited for years for Ed McMahon to pull up in my driveway!