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Autonomic nervous system disorder: No diagnosis or help yet

Stroke & Cerebrovascular Diseases | Last Active: Mar 25 7:47pm | Replies (42)
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@joannemm30809

I did not see anything in any threads regarding dysautonomia as It relates to the autonomic nervous system. Not too sure if this is the appropriate link to be posting my questions but I could find no other discussion and I know Mayo clinic is pretty big on autonomic nervous system malfunctions so I'm not too sure if I've missed some of the discussions on this but here are some of my questions:

I saw my gastro doctor today and she agrees with my cardiologist from 2 years ago and my primary care doctor that all my symptoms relate to Autonomic nervous system breakdown and dysautonomia.

My family doctor is going to refer me to Mayo Clinic in Jacksonville FL but my question is with the 15 Dysautonomia categories I can NOT see where I fit into any of them UNLESS you can have autonomic nervous system problems without dysautonomia.

Been suffering two years now. This is ridiculous. I hope Mayo and my insurance allow me to go there for a exam.

I need a diagnosis quickly. Tired of this

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Replies to "I did not see anything in any threads regarding dysautonomia as It relates to the autonomic..."
Colleen Young, Connect Director | @colleenyoung | Sep 16, 2021

Hi Joanne, I merged the 3 discussions you started into one discussion that is visible in 3 related groups:
Cerebrovascular Diseases
Neuropathy
Heart & Blood Health

I did this so your story is in one place for you and others to follow, and so it is visible to all relative members. I, too, hope that you can get to Mayo Clinic for answers.

I wonder if fellow members @johnwes5819 @jenniferhunter @slynnb @adamek3638 @widman @neeci may have experiences with dysautonomia to share with you.

Dysautonomia International has a useful resource in their Patient Advocacy Tips page. https://www.dysautonomiainternational.org/page.php?ID=108

It is really hard work to get answers. I hope member experiences and this information helps.

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