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Lengthy Unresponsive Episodes: Not sure why

Caregivers | Last Active: Mar 21, 2023 | Replies (7)

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@sueinmn

Hello, and welcome to Mayo Connect, a community of people and caregivers living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice. We can tell you what has worked for us (or not) and provide you with information and conversation about your questions.

I don't have direct knowledge of the unresponsive episodes you describe, but I remember how frightened my Grandad was the first time it happened to my Grandma - fortunately, they were living in a skilled nursing facility at the time, and the staff laid her down and elevated her feet, and she awoke - with no memory of the event. I was a busy new Mom at the time, so never did learn if there was a diagnosis.

Here is a related thread on Connect, it seems to suggest dehydration as a possible cause. https://connect.mayoclinic.org/discussion/parkinsons-unresponsive-episodes/
And a case study that suggests transient low blood pressure: https://clinicalmovementdisorders.biomedcentral.com/articles/10.1186/s40734-018-0068-4

Without moving your Mom, is it possible to check her blood pressure and do a "pinch test" to see if she is dehydrated when she goes into this state?
Sue

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Replies to "Hello, and welcome to Mayo Connect, a community of people and caregivers living with a wide..."

Hi Sue! My mom’s bp is always normal when this happens Along with her other vitals. IV fluids usually do help, but we have been making sure she is very hydrated lately drinking a full 32oz mug of electrolyte mix every day. She will not respond to any external painful stimuli. It is very scary, but docs have just said to let her go through it and wake up since they have no idea what is going on.

I have Parkinson’s for over 27 years. Recently in December of 2022 I was admitted to the hospital for a stroke where I experienced for the first time the unresponsive episodes mentioned. All times my vitals were fine I just could not respond even when the normal pinch and rubs were applied by medical team.
Most recently I had another surgery where the same thing happened. Each occurrence lasts anywhere from 6 to 30 minutes and then I come out of it. I’ve had all types off tests and they all come up negative.
It’s a mystery.