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Autonomic nervous system disorder: No diagnosis or help yet
Stroke & Cerebrovascular Diseases | Last Active: Mar 25 7:47pm | Replies (42)Comment receiving replies
@jwillits8 I just received my International Lim Girdle Muscular Dystrophy Conference blurb fro the SPEAK Foundation. Now, I am not in any way certain that you have LGMD, but there is some possibility there. And This group is very active and very good, and you might learn a lot from them and their conference this weekend. Both The Speak Foundation.com and Sarepta.com are great for folks struggling to gain control of their own lives.
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I just saw my gastro doctor today and she agrees with my cardiologist from 2 years ago and my primary care doctor that I definitely have symptoms that are pointing to an autonomic nervous system problem but I don't see how I fit into any of the 15 categories called Dysautonomia. My primary care is going to try to get me referred to the Mayo clinic in Jacksonville but who knows if my insurance will approve it, probably not as usual. Blue Cross Blue shield is slowly murdering me.