Mary - You can start by reading here: https://www.ofev.com/financial-assistance or here: https://scbn.org/
Bothe organizations assist with reducing copays of high-cost medications for people with limited income.
I'm sure there are others as well.
Sue

I think it would be worth having a discussion with your state or county VA rep to check for your husbands benefits or eligibility. I know the county I live in has a VA rep who helps veterans get medical services or information. It looks like OFEV may be covered or part of the VA's treatment for pulmonary fibrosis -- "2015 — Nintedanib is indicated for the treatment of idiopathic pulmonary fibrosis (IPF). Dosage Form(s) Under. Review. Capsules containing 100 or 150mg nintedanib." -- https://www.pbm.va.gov/PBM/clinicalguidance/drugmonographs/Nintedanib_OFEV_Monograph.pdf

Also, here is a link to the VA Pharmacy Benefits Management Services that might provide some answers - https://www.pbm.va.gov/

My husband also has IPF, and our situation is similar to yours financially. He has applied for VA benefits and has a lawyer working on it. Since your post is 6 months ago, were you able to apply for VA benefits?

My husband's IPF has suddenly gotten worse. His cough sounds as if he's full of liquid now and he uses oxygen all the time. He's had it probably since 2018 when he discovered he couldn't snorkel anymore. His cough started in 2019, but he was OK until our last 6 week visit to Hawaii in November, 2021. He started being short of breath then. His pulmonologist put him on oxygen when we got home. He's no longer able to walk with me, and his cough now sounds like he's drowning because of fluid. He opted out of taking the meds that prolong life due to side effects. He never complains ad says he's not in pain.

Why doesn't your husband know how bad his disease is? Personally, I think that's a mistake. My husband and I talk about his wishes for end of life, and we've had a family meeting to let everyone know what's happening. It has allowed my husband to work on projects that are meaningful to him so he can leave a heritage to his children, stepson, and grandchildren. Our granddaughter is making videos where she interviews him every 2 weeks or so. She's an actor and is very attentive to his needs. He's working on family genealogy and has about 1500 family ancestors recorded now. By allowing him and others to know his situation, everyone has the opportunity to visit him, including former employees, and let him know how much they love him and share the positive difference he's made in their lives. Closure is very important.

I am getting personal counseling plus I attend a Caregiver Group and a Senior Counseling Group. We've been married 40 years and are still in love. Spending time going down memory lane reviewing the many adventures we've had has been so wonderful. I cry when I need to, and then we talk about my future. Only by being honest and transparent about his disease can we do these things.

I don't know your situation, but if possible I encourage you to share his information with him, and then with family if he agrees. Ask the doctor to share the prognosis of his disease with him with you there for support. GailB