I made it 15 weeks. I got so sick I had to get help from my friends to fix food. Finally had to move in with a friend. Did not realize it was the meds making me sick until I stopped them. Stopped Nov 6 and got a lot better, still not much energy, but was walking 5000+ steps daily and increasing. Tried meds again after three weeks. Took two doses and got very ill. So, that was it for me. Feeling tired even though I am sleeping well. Going home Friday to try staying by myself. My friends will still be helping. I have read a lot, and very few people have been able to tolerate the meds. The few that did had the MAC come back.

I have taken the big 3 for 3 years. The first year was really realy horrible, queasy, flu like, slept half the day, not with it .GERD, etc(like a bad dream now), it has become a lot easier now, guess my body has become used to them. I still get the GERD but is quite controlled by omeprazole(not completely). I think I have also become better at controlling the symptoms.The big 3 are not an easy ride and we need something that can kill off the MAC not just make it dormant for a while. Very interesting question @jkiemen , will look forward to the answers.

Hi there, I’ll make it a year in March. Definitely have days but all in all I’m doing ok. I’m also relatively young... vitamins & probiotics are essential.

Dear Suenfl,

Meds can be worst than the Mac.  My doctor for the Mac infectiologist (my french friend on this site can tell if it is a good word) said the antibiotics doesn’t get ride of the Mac and can make some people very sick.  When I read how sick some people are

sick on this site I have never been that sick.  I treat myself with natural product.  My last broncho confirm I do not have the MAC anymore. I think it is due to the probiotic of Dr Ohirra i have taken but not sure.  I know one thing for sure that probiotic

give you good bacteria to fight the bad one.  If you eat a lot of sugar it will activate the bacteria they nourish on yeast and sugar according to my doctor.  Having a good diet without, sugar, starch and fried food works good for me.  Stay in good health! 

I agree with you ncgirl!

Excellent!!!

I was but only kept mac under control. Asoon as I stoppedac galloped ahead. Have now had 11 weeks IV Amakacin therapy & am back on big 3....how long for I dont know...Bidgee.

@jkiemen, I'm not on here often but I did the big three for a year and did fine. I took probiotics twice a day. The only side effect thus far (I finished in April of 2017) has been ringing in my left ear. So one of the drugs probably did that. I think I'm holding steady but my next move is going to be herbal antibiotics. It's worth a try. Nan

@nannette, Hi Nannette! You have been on my mind lately. How have you been feeling?

@ windwalker Hi Terri! I'm good. Ive never felt bad actually but my lungs just never look good on a CT scan. We're going to do another CT scan in March. In the meantime I bought that book Herbal Antibiotics and am going to try two of those herbs. It can't hurt.