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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)
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@maryflorida

Two questions: I'm here because my husband was recently diagnosed with PF. What do you all do to get meds for this? His doctor suggested ofev which is $3900 a month. He is a veteran so they are trying to get help that way, but we don't know what to do in the meantime. Also, I just started asthma treatment and the doctor prescribed 20 mg prednisone for five days. I am in great pain from it, so after four days, she said to stop taking it, but now 3 more days and my back, chest and stomach hurt so much. Is this normal?

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Replies to "Two questions: I'm here because my husband was recently diagnosed with PF. What do you all..."
John, Volunteer Mentor | @johnbishop | Sep 15, 2021

Hi Mary @maryflorida, It's hard for me to imagine the stress of having to deal with the costs of some of these medications. I don't know if this will help but I did see this article from 2017 talking about strategies to manage costs.

Strategies to Manage Costs in Idiopathic Pulmonary Fibrosis: https://www.ajmc.com/view/strategies-to-manage-costs-in-idiopathic-pulmonary-fibrosis-article

Hoping the VA can help with your husband's treatments.

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