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@suenfl

I am in Florida. I would love to take part in a nitrous oxide trial here, as many of you would. The problem is funding. The Canadian one that I know of, there may be others, has funding for 10 local people. I have MAC, diagnosed in July, 2017, but traced back to my open heart surgery in Nov, 2015. I was telling all of my Drs then, what symptoms I was having and they blew me off. No one paid any attention until I had pneumonia 5x in 7 mos. Taking the normal triple antibiotic therapy, but I am so sick from theses drugs. A lot of people are getting this, we need the drug companies, researchers, etc. to take notice and get some clinical trials started. Also Drs need to be more aware of the signs an symptoms so they can diagnose it correctly. Any of you that feel up to making phone calls, call everyone you can think of that can help directly or direct you to someone who can. It all comes down to getting the money to do the research.

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Replies to "I am in Florida. I would love to take part in a nitrous oxide trial here,..."

From what I am reading there is a plan for a phase II trial in the US We need to right the FDA to approve the protocol to start the study

Yes!

@unicorn so true!

@jkliemen @irene5 @heathert @unicorn @dcoburn @cathyxyz @ling123 @suenfl @ncgirl @nick52 @josephene @windwalker we must all contact the FDA, inform them of the extreme need not only b/c the problem is growing exponentially (now impacting folks who are not immunocompromised), but the inefficiency of the current old-school regimen (just pile on more ineffective antibiotics to make the combo a bit more effective). A reminder that if there were a reporting requirement for this infection as there is for TB, the numbers would explode.

Couldn’t have said that better!