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Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20, 2023 | Replies (166)

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@bustrbrwn22

@peach414144. I cannot believe you have to go through this. Unfortunately many of us are. I really appreciate your honesty in posting this as sometimes I feel I have some mark by my name that says “take care of her last she asks too many questions”. What would happen if something terrible of a medical nature happened while you were waiting for this stuff? I am so sorry and wish there was something any of us could do to fix it. It’s over the phone so you can’t transmit any virus or anything. I had several nurses tell me that I’m doing what I have to do, asserting myself for my own healthcare or else I’d fall through the cracks. I love your upbeat attitude but wish it weren’t necessary to have to do that. Bless you and I wish I lived near you. You seem like a terrific human being! Too few of them nowadays. Please let us know if the return call comes tomorrow.

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Replies to "@peach414144. I cannot believe you have to go through this. Unfortunately many of us are. I..."

Thank you busterbrown. I am pretty upset because: After waiting four months to get a referral to Shands it is now put off for another month. Why: They had me set up to see a doctor who wants to do a cystascope procedure to see what it is (parden the bad spelling) I had originally told them that a test was already done to show the mass in the bladder and they received all the radiology results so now it should be removed and biopsied. All the records were sent to them showing about the procedure and the findings etc. AND; Will the insurance pay for another repeat procedure? So here I go waiting in pain for another month to see a different doctor there.
The second: The endochronologist changed the medication for the diabetes which was working well. Did not change the thyroid medication Not good considering the readings but he is the doctor and should know what he is doing so I go along with it.
Any which way this is a week now and the medication was not ordered. After waiting a few more days I left a message with them. I finally got a call back. It is more than a week now. The representative told me in a very sarcastic way that she did not know about this and would check into it. It took a lot for me to ignore her unacceptable attitude and it was bad believe me. I use a mail in pharmacy so by the time I would get this medication in the mail it will be about three or more weeks to receive the meds. It is a bother to write this and who needs to read this as I am sure that all in the medical field and the patients are experiencing the same. It appears I must get used to this but as I see it many people's lives are at stake here. Who knows? THE SHADOW KNOWS! ha, ha, ha, ha.