Treatments for Lichen sclerosis besides steroids

I’m sorry you are dealing with this. It’s life altering. I am finally in a better place... my current regimen: -using liquid organic coconut oil externally each night after showering, -using a compounded formulation of estrogen twice a week and -clobetasol ointment as needed which is now, rarely! When my issues started, I was told to use clobetisol every day- I had so much irritation and dryness- honestly, the coconut oil and the compounded estrogen has made a world of difference for me. I keep the clobetisol ointment handy, but mercifully have not needed it in almost two months!

@joybringer1 how do you obtain liquid organic coconut oil? I used the coconut oil we use for cooking so that is what might have caused my pain from coconut oil. Thanks so much if you are able to respond.

Hi- this is the one I use. I find it at my local grocery store and also at Walmart.

@sue225 I use clobetasol but as sparingly as possible. Are you worried about your skin thinning in your private areas?

@joybringer1 how do you obtain liquid organic coconut oil? I used the coconut oil we use for cooking so that is what might have caused my pain from coconut oil. Thanks so much if you are able to respond.

@bustrbrwn22 Hi Buster Brown. You can also easily find 100% pure organic liquid coconut oil at your local whole foods store or health food store. I find it very soothing as a mouth rinse or on my dry lips. (Be sure not to spit it down your drain. It will plug your pipes! I dispose of it into a paper towel, or into my garbage.) I also using Desert Essence coconut oil mouth rinse and/or their coconut oil pulling mouth rinse on a daily basis.

@artist01 Thanks again for your very useful information! Does using the coconut oil in your mouth help with Oral LP outbreak for you? I understand this is not a medical advice column but I'd like to hear if it helps you prevent outbreaks. I am swishing prednisone almost daily because if I eat raw vegetables it will definitely scrape the sides of my mouth even if I don't feel it an cause an outbreak.

Ask your doctor about using premarin cream on the days you dont apply the clobetasol. If you dont use the clobetasol, labia gets thinned out anyway from the l.s. so, no I dont worry. Its the least of my worries:)

@sue225 I know, this should be the least of my worries, losing my eyesight and hearing should be. I didn't realize the lichen does that, too. Is there no end to the lichen destruction of anyone's body?

@sue225 I know, this should be the least of my worries, losing my eyesight and hearing should be. I didn't realize the lichen does that, too. Is there no end to the lichen destruction of anyone's body?