@mandy680, welcome to the Post-COVID Recovery group. The questions you ask are serious and quite scary. It’s especially frightening because, like so many things with COVID, there aren’t clear answers … yet. Researchers and medical professionals are studying COVID and its after effects.
You ask, “Is there any help?” Yes, there is. Specialized post-COVID clinics are opening across the country and the world. At Mayo Clinic, there is a Post-COVID Recovery and Rehabilitation program. At the you will be assessed by and work with team of physicians, nurses, and health and wellness specialists to address medical issues related to COVID and to develop and use self-management tools. These tools can help decrease post-COVID-19 symptoms and improve overall functioning and quality of life.
You can learn more here: https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/
And follow this COVID expert blog https://connect.mayoclinic.org/blog/post-covid-recovery/
Patients of Mayo Clinic’s post-COVID clinics also have the opportunity to participate in research to advance the understanding of COVID and its effects.
Mandy, have you seen a physician or been to a clinic that specializes in post COVID recovery?
I've been in ans out of hospitals since August of last year they didn't even catch on to the fact it was covid related until mid April and I didn't either because I didn't have regular symptoms. I wore a heart monitor for a month just in time for my heart to stabilize and not jump from 68 to 144 sitting down. I had spine pain head felt like it was full of fluid liquid come out of my euears and nose I had and now still deal with constant pain, burning I got the covid vac on Aug 5 once I felt like I was ok, I was scared because there was no known research on whether it would affect you or not once you took the vaccine if you had had covid. I am not blaming the vaccine however the next day after receiving my first dose of Pfizer I begin to feel sick following days I've developed headaches so bad that I couldn't even keep my eyes open and I noticed a difference in my vision and then I tested positive on August 15th Chicago Med this is where I had sneezing coughing body aches I lost him taste and smell and then that last for about 10 days hardly a fever at all then a few days after being told I was okay to return to a normal life neuropathy head swelling headaches on one side of my head and fluid building up and coming out of my ears I noticed in the morning chalk it up to sinus infection started taking Claritin then my vision started getting really bad while I was driving I felt like I was going to pass out I went to the emergency room they finally after over a year took me seriously and said that they're seeing all kinds of things from post covid now my heart's back to you racing again and the constant worry of something happening but not wanting to go to the hospital and this is frustrating