May I ask a question of the experts here? Please bear with me with what I share and forgive me if I’ve posted this incorrectly:

For a year and a half Ive have left-sided pain like muscles pulling in and around C1 and tongue burning non-stop…no other symptoms. Ive been through the wringer like everyone here. Imaging, meds, surgery because they thought my symptoms were from reflux, poor diagnoses, even asking ME what I’m finding online, many PTs & Chiros, exercises…the rabbit holes are endless. Ive had multiple chiros tell me there’s subluxation occurring in my cervical spine but no one can solidly agree on exactly where (C1-C4). One of my PTs says C1 is the culprit (which I can feel it protrudes more on the painful left side) another PT is less than happy about the C3/C4 mobility, a third PT agrees to C3/C4 mobility issues. I’ve also had many muscular issues in my neck. No other issues, mild C6/C7 degeneration (normal for my age), no other falls, injuries, rotation is pretty good, etc

Here’s the fun part: I’ve recently just gotten an email response from my pain mgmt doctor that both Styloids are “definitely longer than normal” but the right is longer than the left (my left side is problematic) and in great doctor fashion, he shared little details like size. He did say it was hard to see what was causing the pain from the image (CT with contrast) and seems unwilling to further investigte. Only that he’s going to reach out to colleagues for injection options if I choose. You can imagine, I’m livid at the lack of detail and it sure doesn’t feel like an official diagnosis given Ive only had one consult with him.

I know ES symptoms can be broad, often times asymptotic and I’m not looking for a diagnosis here, but I am curious about any input on my scenario you might have. I don’t know what else to even ask the doctors at this point.