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← Return to CLL - newly diagnosed
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Blood Cancers & Disorders | Last Active: Aug 2 11:42am | Replies (117)
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Do you know you just put tears in my eyes? Sweet words. I have a dear friend that I call twice a day like forever. My husband has always been there for me. I do have support. I am truly bless. I need to count those blessings. Never strutted but I like the vision. Saturday Fever just came in my head. lol. You really are kind. I am sending my gratitude for those kind and strengthening words.
Replies to "Do you know you just put tears in my eyes? Sweet words. I have a dear..."
Hi @tina, It’s been quite a while since we’ve chatted. I hope ‘no news is good news’! How are you doing with your CLL? Are you still having Ibrutinib as your treatment option?
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Well, now I’m all misty-eyed, thank you. ☺️ And I have an earworm for the day…you too!! 🎶 Stayin’ Alive. 🎶
I’m glad you have a strong support team. Though I really think you’ll find that this medication will just become part of your daily life and you’ll not have any issues.
I dreaded the thought of all the meds that I had to talk about with the pharmacist on my transplant team. I’d never had more than Vit D3 tabs in my medicine cabinet! Going from that to having a huge daily pill dispenser to keep the meds straight was intimidating. Not to mention the meds themselves! But I stopped reading the labels and starting letting the medications do their job. They all worked and only one of 9 meds gave me a hint of a side effect. You’re not on any of those meds! And you’ll be only taking one. It may not bother you at all but it will reduce the chance of your CLL taking over.
Even on the meds, I’m back to walking 6-8 miles daily and feeling like a nothing ever happened. So go put on those disco boots and kick CLL’s butt! LOL