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I'm a transplant caregiver. Let's connect and share.

Transplants | Last Active: Sep 8, 2021 | Replies (20)
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@cathyherman

Face to face of course we can do it. Different story every time. Coordinators are combative and set the tone and the rules . I’m more educated than the coordinators. They don’t keep up with UNOS. It’s a combative situation. I don’t understand because it’s life or death! I really need to speak with someone who I can ask questions and not feel threatened. My sister will die without a kidney transplant. This back and forth with these centers for 2 years. She has a living donor. I’m not angry . I can’t stand on the sidelines time is her enemy. Thank you. If I could speak to someone over the phone much appreciated. Cathy

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Replies to "Face to face of course we can do it. Different story every time. Coordinators are combative..."
Colleen Young, Connect Director | @colleenyoung | Sep 7, 2021

Hi Cathy, I removed your cell phone number as this is a public forum and we recommend not posting personal contact information.

To speak with a Mayo Clinic transplant specialist, please contact the Mayo Clinic Transplant Center https://www.mayoclinic.org/departments-centers/transplant-center/contact-us/occ-20209784

Arizona
800-344-6296 (toll-free)
8 a.m. to 5 p.m. Mountain Standard Time, Monday through Friday
Email ARZTransplantCtr@mayo.edu

Florida
904-956-3309
8 a.m. to 5 p.m. Eastern time, Monday through Friday
Email transplant-fla@mayo.edu

Minnesota
866-227-1569 (toll-free)
8 a.m. to 5 p.m. Central Time, Monday through Friday
Email transplant-rst@mayo.edu

Is your sister a patient at Mayo Clinic?

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JK | @contentandwell | Sep 8, 2021

@cathyherman I am so sorry that the transplant coordinator you have been dealing with has seemed to be combative. It sounds as if things are going better right now but if not I would definitely not continue with the transplant center that is giving you that attitude. I did not care for the first transplant center we went to (for me), nor did my husband so I did my own research and chose a different transplant center and I was very happy with them, they were wonderful.

I hope things work out well at U Penn. My transplant center was Mass General in Boston. If you are somewhere between PA and MA there are a number of excellent transplant centers in MA such as Beth Israel, MGH, and U Mass in Worcester.
JK

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