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CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Apr 24 5:27pm | Replies (75)

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@loribmt

Wishing you only good news on your biopsy results today! Hugs. ☺️

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Replies to "Wishing you only good news on your biopsy results today! Hugs. ☺️"

Silly me. It is tomorrow. Thanks

My bone marrow showed I am 90% trashed out with my cll. She says I have no more than 3 months before I start treatment. She wants to put me on Ibrutinib. I asked her do you put in my numbers and it give you best the choice for me in my treatment. She said she could give me a referral for a second opinion but she feels this is the best route. You know this decision effects my life. If Ibrutinib doesn’t work out for me then we can look at other treatments. When I read about cll it sounds like my doctor is doing what other doctors would be doing for me. My doctor said Tina it is in your bone marrow and I can give you quality of life but you will never be cured. She said i could live a long time with cll. I am hoping 80. I am 58 and 80 is right around the corner. I haven’t experience the night sweats yet and I work 40 hours a week at a gift shop. I do feel my energy going down but to be told my life is getting ready to change. Yikes. A lot to think about. I guess my only question is would you get a second opinion. I think I know in my heart this is the protocol that every doctor would do, but I have nothing to back that up. lol Thank you for this moment. It is therapy.