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Ehlers-Danlos Syndromes Welcome Jun 10, 2023 | By Samantha Campbell (@samanthacmaa)
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@gracebalch

Thank you for this blog. I feel pretty alone with this condition, even though other family members have it. My former PCP had HEDS himself, and recognized my constellation of conditions and referred me for an assessment, but he retired, and none of my current physicians really has a deep grasp of the implications of having it.

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Replies to "Thank you for this blog. I feel pretty alone with this condition, even though other family..."
Colleen Young, Connect Director | @colleenyoung | Sep 6, 2021

Hi Grace, welcome to Mayo Clinic Connect. I'm glad you found this blog and the patient community here. Allow me to introduce you to some other EDS-ers (people living with Ehlers Danlos syndrome), like @hugforhope @healthhopefreedom @wittmack @csalter @lifetimepain @smbryce1 @moms34eds and @dianeehlinger to name a few.

Please follow the Bones, Joints & Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/) and join the EDS discussions like these ones.

– Ehlers Danlos Syndrome https://connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis-1/
- Ehlers Danlos Syndrome (EDS) & HSD, calling all types!https://connect.mayoclinic.org/discussion/edshsd-calling-all-types/

How are you doing?

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