Transplant: Third dose, no antibodies: How are you staying safe?

Posted by hello1234 @hello1234, Sep 4, 2021

Hi all,
I am a kidney transplant patient. I took the third dose of Moderna and still no antibodies. I live in Florida, the epicenter of disease. Because of the low vaccination rates along with the the highly transmissible Delta variant, I am living in a bubble. (If you get sick in my county, there are no beds available). I wanted to reach out to find out what kind of activities other people in this situation are doing. Are you having dinner with your fully vaccinated school teacher sister-in-law at her home? Are you having lunch with your parents at their apartment? Going to get a haircut with an N95?
Also, have you talked to your doctor or read about possible solutions for us in the future? I read that Pfizer has an antiviral pill in trial as a possible treatment after you become infected. Monoclonal antibodies infusions I think only last for 30 days of protection and we would need another infusion. Has anyone heard anything from their doctors or read something that offers hope?
Thanks everyone!! 🙂

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@athenalee

Sadly, I’m thinking not. But I tend towards the cynical anyway. With so many people unvaccinated though it’s Covid is going to keep mutating. There is already a new variant infecting people. And, it’ll probably never fully go away. So, I’m figuring those who remain ninja like will persevere and those that let their politics and unfounded beliefs guide their lives will unfortunately suffer, as will our world.

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@athenalee unfortunately I agree with you. Do you think there will be a time in the future when we can come out of our bubble... and enjoy shopping again?

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@hello1234

@athenalee unfortunately I agree with you. Do you think there will be a time in the future when we can come out of our bubble... and enjoy shopping again?

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Good morning @hello1234, I think that’s a wait and see question. One which, like now, may continue to be relative to where you live. We have 87% vaccinated and just over 2% positivity, the lowest in the country. Florida doesn’t even report positivity rates anymore, which I personally would be frightened of. Our governor is still holding weekly Covid press conferences, most businesses require masks, and all but one school district is requiring masks.

So, keep positive, work on your mask attire, and hope for the best! And, while you remain indoors, practice your dance 💃🏼 moves and visit - https://www.vermontvacation.com/

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@athenalee

Good morning @hello1234, I think that’s a wait and see question. One which, like now, may continue to be relative to where you live. We have 87% vaccinated and just over 2% positivity, the lowest in the country. Florida doesn’t even report positivity rates anymore, which I personally would be frightened of. Our governor is still holding weekly Covid press conferences, most businesses require masks, and all but one school district is requiring masks.

So, keep positive, work on your mask attire, and hope for the best! And, while you remain indoors, practice your dance 💃🏼 moves and visit - https://www.vermontvacation.com/

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🙂 Thanks so much @athenalee for reminding me to dance and buy some pretty masks!! On a side note, I watched a YouTube with Dr.John Campbell last night on the new Pfizer antiviral pill that's in Phase 1 trial now. Dr. Campbell is a "just the facts" kind of guy so I was very optimistic for this possible covid treatment when I heard that Dr John was optimistic. Pfizer is talking about the end of the year if the human trials are as successful as the in-vitro lab experiments. They are using the same principles as the HIV and HEP C antivirals that are currently being used successfully. Being able to take a pill if you get sick with covid would be a real game changer for the world. They are also working on an IV version for patients that are hospitalized. Pfizer is now officially included in my daily prayers. 🙂

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@athenalee

Thank you! Think I’ll discuss with my transplant team!

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@athenalee Please let us know what they say when you get a response. I am so tired of this and so concerned about flying to Denver after my first grandchild is born. I want to so much, but will it be safe? 😨

There was mention above of Florida. My sister's niece was just diagnosed with Covid. She believes she caught it from a friend who had just returned from a family trip to Disneyworld. While there no one in the family wore a mask and they all have Covid now. I believe they had been vaccinated too, I know my sister's niece was.

Will this ever end?
JK

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@contentandwell

@athenalee Please let us know what they say when you get a response. I am so tired of this and so concerned about flying to Denver after my first grandchild is born. I want to so much, but will it be safe? 😨

There was mention above of Florida. My sister's niece was just diagnosed with Covid. She believes she caught it from a friend who had just returned from a family trip to Disneyworld. While there no one in the family wore a mask and they all have Covid now. I believe they had been vaccinated too, I know my sister's niece was.

Will this ever end?
JK

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I know a few people who’ve flown, they’ve all said it was fine. But, they aren’t immunocompromised. I know you really want to go visit your son and new grandchild, so I’m sure it’s all weighing very heavy on you. I wonder if the CDC has weighed in on immunocompromised folks flying? Maybe ask your transplant team?

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@athenalee

I know a few people who’ve flown, they’ve all said it was fine. But, they aren’t immunocompromised. I know you really want to go visit your son and new grandchild, so I’m sure it’s all weighing very heavy on you. I wonder if the CDC has weighed in on immunocompromised folks flying? Maybe ask your transplant team?

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I have flown several times since last November. I checked with my TX doc first and he reiterated all the precautions in the airport. The plane is safer than the airport. N95 mask, face shield, gloves for touching the escalator, etc., wipes for everything. Wipe down luggage. And make sure you carry your meds with you.
I flew to see family every time.

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@athenalee

I know a few people who’ve flown, they’ve all said it was fine. But, they aren’t immunocompromised. I know you really want to go visit your son and new grandchild, so I’m sure it’s all weighing very heavy on you. I wonder if the CDC has weighed in on immunocompromised folks flying? Maybe ask your transplant team?

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@athenalee I hesitate to ask my transplant team because their guidance so far has been to stay in a bubble. If I ask them and they say I should absolutely not do it and I choose to any way that could be a problem.
JK

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@estrada53

I have flown several times since last November. I checked with my TX doc first and he reiterated all the precautions in the airport. The plane is safer than the airport. N95 mask, face shield, gloves for touching the escalator, etc., wipes for everything. Wipe down luggage. And make sure you carry your meds with you.
I flew to see family every time.

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Well, you certainly ticked off all the safety boxes. Might be a way to put your mind at ease and be safe JK @contentandwell…

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@contentandwell

@athenalee I hesitate to ask my transplant team because their guidance so far has been to stay in a bubble. If I ask them and they say I should absolutely not do it and I choose to any way that could be a problem.
JK

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Ok, be ninja safe, go, and don’t mention it!

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I'm not a transplant recipient, but my husband is. I've volunteered to provide food for homeless kids through Backpacks for Kids for years, so I've been out and about during Covid. Then, there was a forest fire just north of our little town that left 293 families homeless. Some of them started a program of clearing their own lots, saving $20,000-$50,000 per family for people mostly low income tourism workers, so I wound up volunteering to fix lunch for a hundred every weekend last fall and winter--more getting out in the community. After the other three women who've kept Backpacks going during the past months had all been fully vaccinated, we had the freedom of working in our pantry sans masks, which was great, as the work is very active, involving lots of lifting and moving things. That was great, but now we're back to being masked all the time--simply due to the small percentage of those in our community who refuse to mask or get vaccinated! Once again, everyone here is very good about wearing masks everywhere, although it's not necessary outside if you have no direct contact with others.

Some community events are going forward, but requiring that all participants show proof of full vaccination, while others have simply cancelled what they had planned during the time two or three months ago when things looked far better. I'm not certain what's best: to cancel group events or to hold them while requiring proof of vaccination. Would the fact that only vaccinated people be allowed to gather be an encouragement for more to man up and get shots????

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