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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@nick52 , Hi there! I did check out the video, thank you for posting that, it is good information. My daughter is 30 yrs old and has trouble swallowing. I want her tested before her lungs get ruined. By the way, how are you doing these days?
Replies to "@nick52 , Hi there! I did check out the video, thank you for posting that, it..."
@nick52, Hey Nicole, how did it go today at the specialist?
Dear Windwalker,
Today I met the orthophonist who is the specialist for swallow abnormalities. On the xrays they could see both tube the one that goes into the stomack and the one into my lungs. She said they were able to see the clear liquid going down a bit in the lung
tube before the swallowing process has done its job. So to prevent liquid to get into the lungs I will have to thicken my clear liquid because this is the problem (clear liquid not thick) so I have to thicken at the NECTAR LEVEL which mean a bit thick like
a Yop (liquid yogourt). The thickener is called ThickenUp (clear) it work really well and doesn’t change the taste of whatever I drink. I need to be careful eating a balance acid alkaline food to keep the ph balanced. The weakness is at the back of my tongue
on the right so I can do exercices as seen on the video I have posted on this site on SWALLOWING EXERCICES. The ThickenUp is a must not to aspirate my liquid.
I also have to have an MRI of the brain because aspiration can be caused by a neurology problem. In my case the doctor radiologist think it is due to my TMJ surgery in 1985 in Quebec or 1986 in Portland Maine. In 1986 they had to cut the outside of my throat
to prevent infections.
So we need to check if it is neurology or the surgery. I will keep you posted.
To me it make a lot of sense because of all the problem I had since that surgery.
Windwalker, if you email me at nickyves52@hotmail.com I will send you a photo of the ThickenUp because there is 2 kind that I saw at the pharmacy today.
Sorry it is nicyves52@hotmail.com. (No k)
@nick52, Wow, Nicole! This is all incredibly interesting. Swallowing issues adds another facet to the causes of lung diseases, especially bronchiectasis. Thank you for sharing this with the group. This may be a topic for some on this thread to ask their doctors about; particularly those with reoccurring lung infections. how often do you do your exercises?
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Dear Maggie and Windwalker
I was so privilege to be able to talk to the radiologist. He said to me nick52 that Dr Ubla radiologist that aspiration of the liquid is the cause of my bronchiestasis. Video déglutition X-ray is not recommended by doctor and wonder if they know it exist
lol. After viewing the video déglutition watch the video ASPHAGIA you will get a lot of information you won’t believe. I found my mucus problem. Related to aspiration and in my case it is the SILENT type. So that means you are not aware you have an aspiration
problem. I am telling you, you might find a lot of info about the symptoms you have. The problem is the bronchiestasis who is responsable for catching bacteria. I am meeting the specialist on Monday for my aspiration problem.