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Savella for Peripheral Neuropathy?

Neuropathy | Last Active: Sep 5, 2021 | Replies (19)

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@athenalee

Well, don’t be hesitant if you need them. They know it’s a vital role of their jobs. I’ve had two providers recommend drugs that interact with my immunosuppressive meds. One was an endocrinologist, prescribing a med for osteoporosis. I looked it up and refused to take it because it would interact in a moderate way by compounding the impacts of my meds on my kidneys…quote, “it’s okay because your kidney functions are fine.” Absolutely nonsensical since I have to be on these meds for the rest of my life!

The other was a rheumatologist PA who recommended a med that could have a major interaction by causing one of my immunosuppressive meds to rise in my bloodstream substantially. The goal is to regulate these drugs at a constant level in one’s system. Which I pointed out to him and he argued that I’d adjust. Then he said that the two immunosuppressive meds I take interact and compound their effectiveness. Yup, that would be the point!
Needless to say I no longer see him.

Stay positive and safe!

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Replies to "Well, don’t be hesitant if you need them. They know it’s a vital role of their..."

@athenalee WOW - I thought that stuff only happened to me. It's exhausting being an advocate for yourself. You can look fine outside (except for now I am losing my hair) so doctors think you are lying or exaggerating. It's so hard to find the gems that believe you. The pain across my body is unbelievable. Thanks for sharing with me so I don't take it so personally.