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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Jan 19 10:15pm | Replies (9354)Comment receiving replies
Good Day, my name is Maggie and 10 days ago I was admitted to the hospital with pneumonia and discharged later with pneumonia, bronchiectasis and MAI. They have started me on the 'big 3'. So far I seem to be tolerating these OK as far as appetite, nausea and diarrhea. I see my GP this week. I am overwhelmed, but grateful to have found this group. I have only had one positive sputum test. I had a bronchoscopy, came up with a different rare bacteria (moraxella?), but again negative for MAI. This was my second case of pneumonia this year, so maybe that is why they opted to start the antibiotics. Sad to hear Katherine, someone I never knew or interacted with, passed away.
I am 59, about 15 pounds overweight (though losing weight this year) and was very active. This has kicked my butt. I have no idea where it came from. I live in upstate NY and work as a bookkeeper, with some public interaction. I want to get back to exercising, but need to recover from the pneumonia first. I also see a cardiologist later this month and will clear exercise with him.
Thanks for reading.
Replies to "Good Day, my name is Maggie and 10 days ago I was admitted to the hospital..."
@maggiew I agree w/Terri...get a second and even third opinion...being on any antibiotics let alone those associated with MAC when not necessary is dangerous.
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@maggiew I looked up 'moraxella'. It is not so rare, what would be rare about it is if a totally healthy adult caught an infection from it. It is fairly common for people with COPD and bronchiectasis to contract this. It is the germ that causes pink eye in children and respiratory infection (pneumonia) in adults with illness and the elderly. It is commonly picked up in nursery schools and hospitals and is easily treated with just about any antibiotic. It is suseptible to most of them. The ones you are on; should take care of it. I am confused as to why you were put on the BIG 3 antibiotics if your bronchioscope came back negative for it. YOU MAY WANT TO SEEK A SECOND OPINION. From what I have read, you only need one antibiotic such as ciprofloxacin to get rid of the moraxella. The BIG 3 antibiotics are harsh and should only be used, according to many doctors from cutting edge institutions, if you have a full blown, colonizing case of MAC. About Katherine...... I wish you could have conversed with her here. She was an amazing person, I miss her so much. That is not a time that I get on this site and don't think of her. She not only inspired me to get well and stay well; but she also unintentionally helped me to be a better person. Stay with us, and we can walk this journey together. You posted this eight days ago, so I am hoping that each of those eight days found you feeling a little bit better with each one. Please keep us posted on how you are doing. Hugs!