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← Return to Vulvar Cancer: Anyone else?
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Hi,
I am new to this site and trying to find other women who have had or have vulvar cancer. I realize it is rare and there is not much information on it, but I am currently still having long term effects from radiation and was wondering if anyone would be willing share info. Thanks, Trish
Replies to "Hi, I am new to this site and trying to find other women who have had..."
I finished radiation in March and still feeling effects from it. Someone mentioned diarrhea that they can't control. I don't have that problem but because of my incision is so close to my anus that I have to take miralax every couple days because every time I poop I bleed just slightly nothing too serious. And also I'm having trouble with my bladder like I have to wear a thin pad every day because a little bit of urine sneaks out. I am going to start pelvic physical therapy in January and hoping that helps.
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Hi Trisher, I was just about to head off to bed when I saw your message. Let me start by saying welcome. Vulvar cancer is rare. But there are several members who have had radiation for vulvar or other gynecological cancers that you can connect with here like @ali1974 @samaco @naturegirl5 @vsinn2000 @stoligirl and @miriam57
You may also be interested in reading this older discussion:
- Radiation therapy for vulvar cancer https://connect.mayoclinic.org/discussion/radiation-therapy-for-vulvar-cancer/
Trisher, how long ago did you have radiation? May I ask what long-term radiation effects you're still experiencing?