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Neuropathic Knee Pain Etc.
Dear Ones, Neuropathy is so strange but I was wondering if any of you have more intense sting/burn etc., in your knees than other places on your body? This doesn't minimize the same Sxs everywhere else!! This is often my experience. I haven't seen any mention of that. It's so bad that I must sit with ice gels on them a lot! I don't recall seeing the words, "sting" and "burn". I don't have the pins and needles bad enough to bother me but the stinging and burning skin everywhere, is so bad it makes me crawl out of my skin, fight for my sanity, cry, my heart beat faster and harder with irregularities constantly. Feels like I 'm being burned alive. My feet feel swollen /fat, ice cold, damp and NUMB! I have so much numbness that when in the pool I can not feel the water on my skin! I can only feel temperature and pressure. It's the oddest phenomenon ever! I have sensations that my skin is wet in places as well but when I touch it, it is dry. I also have what feels like constricting bands of continuous low voltage electricity around my upper arms. My newest symptom is that my back feels like it's leaning on a heating pad turned up high. Go figure! I could go on about many, many other paresthesias I live with. This is info only, no complaints! Many blessings, Sunnyflower
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Hello @techraw and welcome to Mayo Clinic Connect. I can see you are interested in connecting with @sunnyflower so I've used the "@mention" feature to notify her of your interest. You may use that to send a notification to another member that you want to connect as well as reply directly to a comment they've made. I hope that helps!
That said, as you wait for Sunnyflower, would you give a little bit of background on your neuropathy history?
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1 ReactionHi Amanda, I have neuropathy from my knrrdown to my feet. That section of my leg is very numb and I have no feeling in my feet. I was just wondering if there was some treatment or medication that could keep the pain relieved. I have had this problem for many years and it affects me twenty-four hours a day.
I had surgery in my right knee about 40 years ago. The doctor took out about 15% of the cartilage and my leg is now pointing towards the right below my knee and I am bone on bone on the right side of my knee joint. I have severe pain in my right knee that throbs about number 8 out of 10 along with my neuropathy. Pain meds don't help!
Any helpful suggestions? Thanks. Ron
Hello @techraw, I would like to add my welcome to Connect along with @amandajro, @sunnyflower and other members. Sorry to hear you've been trying to find help for the pain in your right knee for so long. I had pretty bad pain in my right knee for a few years when it was bone on bone. I did get a cortisone shot in the knee which helped for a short period of time but eventually I ended up having to get a knee replacement. Have you thought about getting a total knee replacement since your right knee is bone on bone?
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2 ReactionsI have occasional leg/foot numbness, but hiking down a rocky stream bed on a mountain a month ago resulted in knee pain. I can still take walks, but it is still sore. After a month I would think it would heal. Does my PN dramatically increase the healing time for knee injuries? Seeing Ortho next week and some doctors may not factor in PN as contributing factor in healing time.
Hi @lgpn5094, Welcome to Connect. I don't have any medical background or training but do have experience with knee pain along with neuropathy. I have degenerative arthritis that has worsened over the years. At the same time I've had small fiber peripheral neuropathy in both feet and legs for the past 30 years. While experiencing the knee pain I had cortisone shots to relieve the pain then finally a few years ago had a knee replacement of my right knee and the neuropathy had no effect on my healing time but that's just my experience. I do think it's great that you have an ortho appointment next week so you can determine a treatment plan.
I've read that knee pain from hiking downhill is not that uncommon due to stress on the kneecap and muscles. Is there any swelling that goes along with the pain?
I agree the steep, rocky downhill hiking is tough on the knees.
I have No swelling. I've hiked for years, but left knee has been hurting a month.
Neuropathy causes me pain/numbness for a few days, but only that.
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2 ReactionsHi there @lgpn5094, .......just jumping in here to welcome you.
I am or was a "trekker" with a group of gals for 10 years. They finally "captured" me and told me to get a TKR......which I did. I also lived at about 5,500 ft for 23 years which was a great thing for my cardiovascular system. What it didn't help was the condition of my knees.
When I asked my surgeon how long the surgery would last, I think he said, "Forever if you always go uphill. 5 years if you continue to go downhill." So now I live in Mountainless Minnesota. Of course, I had to have a TKR on the other knee as soon as I arrived. And now I walk on the "flat ground". (Miss the mountains though,)
In your message, you state that you are also dealing with neuropathy pain/numbness. How are you doing with that condition?
May you be free of suffering and the causes of suffering.
Chris
Chris,
Muscle injuries take longer to heal. Agree on the uphill/downhill knee stress. I would greatly miss the experience of seeing the landscape from mountain peaks. I am doing slower less strenuous hiking. Wise to reduce stress so I'll be able to walk longer.
Drove to 11,000 foot BearTooth Pass in Montana over Labor Day and walked around.
Hope things go well for you.
Lee
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