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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)
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@heathert

Hi all good news re : Nitric Oxide Treatment, I got a reply from my email to them, here it is:

Thanks for your email. AIT is moving as quickly as possible to provide our nitric oxide treatment for NTM patients. At this time we are conducting a phase 2 trial in Israel. We hope to begin a phase 3 trial in the United States in 2018 that will lead to US FDA approval. We have a lot of work to do and all of the employees are dedicated to succeed. I will add you to our email list so that you will be up to date on our progress.

I will forward any updates I get onto this site. So amazing that they are able to work so fast with such a promising treatment.
Heather 🙂

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Replies to "Hi all good news re : Nitric Oxide Treatment, I got a reply from my email..."
nick52 | @nick52 | Oct 21, 2017

Dear Cila 

I just posted a description of what my radiologist said it was the cause of having bronchiectasis.  To me it make sense what he said.  It is not the MAC that cause bronchiectasis it is the condition of our lungs that makes it easier to get bacteria.

I need to meet with the orthophonist (she was present for the test) to find out about food and drinking. The radiologist said Liquid was my problem not thicker liquid or food. I need to drink thicker liquid liquid he said.   I will meet her (orthophonist)

oct. 30 th .

I wish I could have more time with the radiologist.  He said he will recommend an MRI because it could also be a neurologic problem. God this was all new stuff for me.  Never read that anywhere.  Did they have done an MRI to you to eliminate that possibility?

 At lease it doesn’t have radiation in an MRI.  If you wish I can keep you posted.  Thanks for sharing your experience with me?  Did you find out after you had a video deglutition?

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unicorn | @unicorn | Nov 7, 2017

Clinical trial going on right now in Canada. Using nitric oxide for NYM

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Terri Martin, Volunteer Mentor | @windwalker | Nov 9, 2017

@unicorn Hi Christa! Been thinking of you a lot, and hope you are on the road to recovery. I have missed you! Thank you for the update about the nitric oxide.

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