Want to talk with others. Have you found relief from CRPS?

@jennmc, You might want to take a look at the following discussion and then discuss it with your doctor when you visit Mayo Clinic in Jacksonville later this month to see if it may be an option for you.

Mayo Pain Rehabilitation Program: https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

i will. thank you for your help

@maniceti Hello. I'm sorry to hear about your shifting of symptoms. I have a chronic pain syndrome called Central Sensitization Syndrome (CSS), and also experience symptom shifting. At one point in my journey of not understanding what was wrong with me, I thought I was going crazy. Here's a link explaining how symptom shifting occurs with CSS. I think you may find it interesting and possibly helpful.

How long have your symptoms been present?

Greetings. My first post on this site. My story is that about 2 and half years ago I had hemorrhoid surgery and subsequently after many doctors and examinations, have come to a working diagnosis of anal nerve involvement possibly related to the actual surgery and the development of scar tissue. My pattern of pain is that when I get up in the AM I am ok but by late morning I develop pinching, burning or what has been described as neuropathic type pain in the anal area which increases in intensity until I am in significant pain and sitting on ice for relief. I have tried gabapentin with little success but do have difficulty with higher doses and being able to function. So much for all the details. My question is has anyone had a similar pain issue and/or had a procedure called a ganglion of Impar injection. I had an injection about three weeks ago but have had no relief. I have another appointment with the pain service but do not know if another injection might be successful or if there is another approach
I am literally quite tired of having a pain the a——
Thank you

I had my pump implant 21 years ago it put dilated into my spine at the spot where the problem was it worked until they used the wrong type of medicine in February now I am in pain just like I never had one because they won’t turn it back up I was getting 6.5 milligrams every 24 hours and now I have gotten 1 milligram in 80 days that is the problem you have no control over what they do and with all this stuff going on about opioid I think they want out but it worked great when it did

@bwardccrn Hello and welcome to
Connect. I'm sorry for your nerve pain since having hemorrhoid surgery. That sounds awful. After 2 and a half years, I understand your frustration.

I am not familiar with ganglion of impar injection, but have had other injections, both nerve blocks and radio frequency ablations for nerve pain in my neck, head and back. Once I realized these procedures were not working for me, I stopped and ultimately took another approach by going to the Mayo Clinic Pain Rehab Center.

I hope another member is able to offer knowledge of their experience with ganglion impar injection.

Have you spoke with your pain management team regarding your reservations about another shot?

I am starting a DRG IMPLANT Aug 26 , I will post how things go

I have had the nerve blocks. I posted on another post about it and do not care at all to provide more info.

Well just finished with me Abbott DRG IMPLANT TRIAL and had no good results. I was diagnosed with CRPS after TKR in 2018 and have tried so many injections and really thought the DRG was the answer but not to be, so the search continues. I was accepted at UPENN PAIN CENTER so hopefully there is an answer there. Gotta keep moving

My Granddaughter has been diagnosed with this and so far she is not getting any relief. No one will giver her pain medicine. She has been to 5 Drs. had injections, to no avail. Looking at asking a Dr to consider Low Dose Naltrexone, I read where Stanford is starting a study for this on CRPS. She is way too painful to do the boot camp approach that many Drs. are suggesting. I am going to tell her about this site so she can have this as a tool to communicate.