Essential tremors: any ideas on coping and managing tremors?
I saw my neurologist yesterday and he said that I have essential tremors. He said they will get worse and progress to my other hand. Do any of you have this and if so is there any way I can slow the progress. He said it will probably take 3 years to get really bad. I am on Gababentin for fibromyalgia and restless leg and that is one of the drugs that is for these tremors. I am dropping things from my left hand and he said that will get worse too. I am buying plastic glasses as I dropped a real glass in the dishwasher- what a pain that was to get all the glass slivers out of the dishwasher. I would appreciate any ideas on coping with this and how I can manage it. Thank you
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Because of my other medical problems they have me on Clonzepam.
mslinda20@mslinda20 Gabapentin for tremors! Who told you to take that? It is the cause of my tremors. Gabapentin was used to control my seizures. It only had the side effect of tremors. A nearly immediate side effect was extreme shaking of my right hand immediately after awakening. If I answer the phone it almost flies out of mt hand. My hand excessive shakes when I write that I write like the elderly. The right upper side of my body just shakes shakes and shakes sometimes.
Laurie
@mslinda20, @amandajro et al
Hello, I've had varying degrees of tremors for 15+years. I have fewer problems with this issue now, after wrong diagnosis of MS and Parkinson's. After wonderful Mayo docs finished the testing, I have essential tremors that seem now managed by taking Requip, for restless leg syndrome. It works wonders for my legs and other symptoms, tremors are much less and less often
Worse in morning when I'm waking.
I've dropped so many glasses and plates and all things possible! I also have severe arthritis, very bad now in hands so I have tough time picking up things period. Writing , typing, whatever...but tremors are less.
I'm off gabapentin, off lyrica, lamictal, and other 'brain' drugs. Since, I'm so better and so different. Also, I use medical marijuana, CBD:THC tincture nightly for anxiety, pain, insomnia, and other issues. It helps.
I found by asking questions, be proactive, get the facts from trusted docs so you can make sound decisions.
Blessings on this journey. Elizabeth
Very interesting and certainly worth trying.
I’m very interested to learn others have issues with fine motor skills and heat conditions. I was recently diagnosed with FND by Mayo but it’s such a huge umbrella and difficult to know what to pursue.
Hi Elizabeth. I'm glad to hear you were able to discontinue your "brain drugs", and are managing your symptoms. Congratulations on doing better.
Kudos to you for being your own advocate and being proactive. That's a big step towards taking control of your own health.
Hello @mslinda20, welcome. Thank you for joining the
conversation on Connect. I'm sorry to hear that you struggle with tremors. I do not have them and can not advise specifically, however, I did attend Mayo Clinic's Pain Rehab Center (PRC) where tremors were on the list of conditions that were helped.
Here is a link to the PRC program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Also, I worked with an incredible team while there, lead by Dr. Sletten. Here is a video presentation on Central Sensitization Syndrome and how it affects many health issues, including tremors:
https://www.youtube.com/watch?v=8defN4iIbho
Food for thought. I hope it helps in some way for you. How do you currently manage your tremors?
Wonderful resources! I had hoped these classes would be available virtually as I’m not physically up to travel. When at Mayo the neurologist recommended these. Dr Stellen described my circumstances completely-18 specialists later, and no answers. Thanks for sharing.
Neurologist recommendations but I have yet to start,
You're welcome! I'm glad you found the resources helpful.
I can attest to the multitude of "oligists". I believe I saw just about every one during my journey, too. Dr. Sletten was spot on for me. I remember thinking, how on earth does he specifically know me, when I first watched the video. Light bulb moment!
May I ask what makes you physically are unable to travel?