How To Decide Next Steps After Lumpectomy.

Posted by ngguil4d @ngguil4d, Jul 26, 2021

I am 66 years old and I had a lumpectomy and oncoplastic breast reduction on June 23 after being diagnosed with IDC IA, pT1a, pN0(sn), grade 1, ER+, PR+, HER 2- breast cancer in my right breast. My breast surgeon removed 100 grams of tissue down to the chest wall from my right breast along with one sentinel lymph node. The plastic surgeon removed another 100 grams of tissue from my right breast along with skin, Then 200 grams of tissue along with skin from my left breast. The pathology on all tissue and skin from both breasts along with the sentinel lymph node came back negative.

I have seen a radiation oncologist and she did not push radiation therapy. My husband and I both felt that she thought endocrine therapy would be better. Then she told me that if I decided to do radiation she would recommend 3 weeks/5days a week of full breast radiation.

I have my appointment with a medical oncologist this Thursday and I have been trying to do some research but the more I read the more confused I get. How does one figure out what is best?

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@ngguil4d

So far no problems. I was given some stretching exercises to do to keep my chest area from getting stiff. I have also started using Aquaphor to help the skin.

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I found that pure aloe Vera gel made it feel a lot better too.

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@lisman1408

Your case seems similar to mine, I’ll be 68 in a few weeks. I was diagnosed a little over 3 years ago. I am very grateful that my Ob/GYN found a small lump in my right breast during a routine breast exam. I had surgery to remove the lump and it was cancer. I was at an early stage 2, and very lucky that only the sentinel lymph node showed cancerous cells. I am so grateful that I maintained my regular visits with my gynecologist, and that the cancer was caught at an early stage.

My treatment was surgery to remove the tumor, and enough lymph nodes to determine that it had not spread very far in my lymph system. Following surgery, I was given the choice of radiation for 5 days a week lasting about 4 1/2 weeks, or Chemo. I choose the radiation option. It was kinda grueling going to radiation every day, I became pretty run down and tired: but I am grateful that at nearly 3 years out from diagnosis and treatment, I am still cancer free. I’m not fond of the meds we need to take following treatment (anastrozole, Tomoxifin, Exemestane, etc.). But even the nasty side effects of those meds are much better than cancer itself. Good Luck to you ngguil4d! We’re all rooting for you!

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@lisman1408, your experience is almost exactly like mine. I have been on various AIs and now on Tamoxifen. I have to continue it until 2023. Like you, i had bad side effects from Anastrozole, Exemestane etc. Tamoxifen has side effects, but more tolerable than the others. I am going to have a HUGE celebration in 2023! Still, I am grateful for the protection of these drugs.

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@sparklegram

@lisman1408, your experience is almost exactly like mine. I have been on various AIs and now on Tamoxifen. I have to continue it until 2023. Like you, i had bad side effects from Anastrozole, Exemestane etc. Tamoxifen has side effects, but more tolerable than the others. I am going to have a HUGE celebration in 2023! Still, I am grateful for the protection of these drugs.

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Sparklegram, I was also on Tomoxifin, and overall felt pretty good! Unfortunately, after a week or two of taking it, I broke out in hives! It seems I’m allergic to something in Tomoxifin…. so I’ve settled on Exemestane. It’s not great, but it works. I agree, there are side effects to most of these drugs. I count my blessings and just move on. Thanks for the response. It’s good to hear from you! Sending you best wishes!

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@lisman1408

Sparklegram, I was also on Tomoxifin, and overall felt pretty good! Unfortunately, after a week or two of taking it, I broke out in hives! It seems I’m allergic to something in Tomoxifin…. so I’ve settled on Exemestane. It’s not great, but it works. I agree, there are side effects to most of these drugs. I count my blessings and just move on. Thanks for the response. It’s good to hear from you! Sending you best wishes!

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Lisman1408. I have had a rash also and treating it with a prescription cream. recently, elsewhere I have been having little itchy places that look like bites. Hmmmm... Best of wishes to you, too!

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Hello. I had Triple-negative breast cancer (diagnosed in Aug. 2020) I'm 66 years old and after chemos, lumpectomy, and serial sectioning of sentinel node surgery (only 1 node removed, and it was clear) my tissue was removed with the 2 cm margin (tumor completely disappeared on my third infusion of Taxol) my biopsy came back as a complete pathologic response. Next was the radiation that was highly recommended, especially after a lumpectomy. I only needed 4 weeks, 5 days a week sessions, full breast radiation, and the last 4 sessions were boosters in the area of the tumor site. The oncologist said relapse without it runs 20 to 40% and with radiation used reassurance is 5 to 10%.

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@trisha97

Hello. I had Triple-negative breast cancer (diagnosed in Aug. 2020) I'm 66 years old and after chemos, lumpectomy, and serial sectioning of sentinel node surgery (only 1 node removed, and it was clear) my tissue was removed with the 2 cm margin (tumor completely disappeared on my third infusion of Taxol) my biopsy came back as a complete pathologic response. Next was the radiation that was highly recommended, especially after a lumpectomy. I only needed 4 weeks, 5 days a week sessions, full breast radiation, and the last 4 sessions were boosters in the area of the tumor site. The oncologist said relapse without it runs 20 to 40% and with radiation used reassurance is 5 to 10%.

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Hello @trisha97 ,welcome to connect. I am so glad you found this. I am also really glad you got your radiation and lowered your risk by a ton of recurrence. How long since radiation? Are you having any issue after having taxol and radiati9n

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@auntieoakley

Hello @trisha97 ,welcome to connect. I am so glad you found this. I am also really glad you got your radiation and lowered your risk by a ton of recurrence. How long since radiation? Are you having any issue after having taxol and radiati9n

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Hello @auntieoakley, and thank you. I finished radiation almost 4 months ago. The taxol was my 1st chemo. Dense dose 12 infusions once a week. I did very well on Taxol in general, didn't even affect my WBC count was in the normal range for the entire 12 weeks. The tumor completely disappeared after 3rd session, however, on the 10th session I developed a fever of 38°C/100.4°F, that climbed to 39°C/102.2°F, and was hospitalized for 8 days. They couldn't keep it down without IVs of Tylenol. Tested me twice for COVID, negative. Then tested me for bacteria infections, negative, and a panel of 27 viruses, all negative. Tried one antibiotic, no response, the fever went back up, finally, they put me on another type of antibiotic plus an antiviral drug. Finally, I began to respond, fever broke, although we never knew if I was responding to the antibiotic or the antiviral drug. We never knew what was the actual cause. The oncologist gave me a 3-week break from Taxol. We resumed the last two infusions without incident. Then a month's break, and we began AC once every 3 weeks for 4 months. AC was ugly, made me feel poorly and after 2nd infusion, it wiped out my white blood cells. Need to take injections of filgrastim to get my count back up to normal to finish out the AC treatment. Lomptomy went very well. One month break, and then we did the 4 weeks of radiation, took me about 6 weeks to get my breast skin back to a state of normalcy. My 6-month check-up will occur in November. Trying not to think about that until November. Just continue to work on healing. 🙂

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@katrina123

My breast surgeon recommended radiation therapy for 5 days a week for 4 weeks following my lumpectomy. She took into consideration the size and type of cancer that I had. I just followed her advice.

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Same recommendation and amount of radiation sessions.

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@trisha97

Same recommendation and amount of radiation sessions.

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Congratulations on getting through it. I took TAC for my initial so I have an intimate knowledge of what you went through. Are you starving for all the good things you couldn’t or wouldn’t eat for a year? Lol

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@auntieoakley

Congratulations on getting through it. I took TAC for my initial so I have an intimate knowledge of what you went through. Are you starving for all the good things you couldn’t or wouldn’t eat for a year? Lol

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Ohhhh, yeah! However I had a lite state of nausea that was all day and night long, so, it was just lite enough that I never felt hungry at all. Just recently, it's all over! It's come to mama with all my faves now!! 😂

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