Hi @oram, There are a lot of members that have discussed Hidradenitis here in this conversation where I have moved your post. I hope this helps you to connect with some of the members.

Also, here is some information from Mayo on the diagnosis so you can see what their take on the condition is.
https://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/diagnosis-treatment/drc-20352311
Have you called Mayo at all to talk about a possible appointment?