Hello @welovergirls, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It's interesting to hear that your father and sister have also experienced the same symptoms. Sorry to hear that the doctors have mostly not listened to you. I'm glad that you got it on record. I think it's good to plan your visits to the doctors and be prepared for what you want to ask before you actually have an appointment. A great site to help with that is PatientRevolution.org - https://patientrevolution.org/visit-tools

I found an article that speaks to genetics may play a part in the condition that I thought you might find interesting if not helpful -- Study identifies gene that makes gentle touch feel painful after injury - NIH-funded research raises possibility of designer treatments for common form of pain:https://www.nih.gov/news-events/news-releases/study-identifies-gene-makes-gentle-touch-feel-painful-after-injury.

This is an older article from 2014 but I thought it may be helpful -- Immersed: How I Found a Way (After Decades of Trying) to Help My Allodynia and Nerve Pain: https://www.healthrising.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/

Do your father and sister still have flare ups? Just wondering if they made any changes that helped their symptoms.

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