Reclast Infusions: Side-effects & Recovery time

With numbers around 3.3 Forteo or Tymlos would be helpful, if insurance will cover thhem.

I drank a gallon of water for 8 days and still had those side effects it was bad and lasted about 5 days. If you need treatment you may not have many options. Best of luck

I had no side effects with Actenol, which is a monthly pill containing the same ingredients as Reclast. My (previous) doctor told me that Reclast was much more effective than pills, but I've subsequently learned that the only advantage of Reclast over pills is convenience. There must be something about the infusion process that caused my horrible symptoms--maybe an autoimmune reaction with complications. I'm totally offended by the myth that you can avoid the horrors associated with Reclast simply by drinking tons of water. Who started this myth--the manufacturers of Reclast??? And I don't believe that the horrendous adverse effects of Reclast are that uncommon. My acupuncturist had previously treated a healthy woman in her 50's who had to be hospitalized after a Reclast infusion. (She did eventually recover fully.)

Forteo caused severe dizziness during my second month of treatment--I couldn't walk a straight line. Prolia caused cystic acne--which doesn't seem so bad after my Reclast experience. I've never had adverse effects with any other medication. Now my task is to find a new osteoporosis doctor. Any recommendations in Chicago?

@jodiej I'm going for my 2nd Reclast infusion on Sept 8 last year I didn't have any reactions I had macula degeneration a year before so that Dr who said O.AMeds cause it are all wrong anyway to get back to this year I have a lot of problems with my back I didn't have last year so hope I won't have any reactions this year also or just mild ones

So sorry to hear you had reactions to Forteo and Reclast. I was very fortunate to do the Forteo shots for two years with no side effects and good increases in bone density. I did follow the hydration and Tylenol recommendations prior to my Reclast infusion, and had only a small headache as a possible side effect from that. I hope you find what works best for you.

I am on Letozole for breast cancer (double mastectomy) and due to osteoporosis the oncologist wants to give me an infusion of Reclast. I have been reading negative reviews and am reluctant to have this infusion. Since taking Letrozole I have developed pain in my knee and hip. Any suggestions? in 2016 I had ovarian cancer. With both cancers I did receive chemo drugs (carboplatin & taxel). Thanks.

@bjbnavy1234 You certainly have a lot to deal with and think about. Welcome to Mayo Clinic Connect where we’re all patients, and families and caregivers of patients. We’re not medical professionals so we cant prescribe medications or diagnose problems. But we can certainly help with personal experience.
Ive been on steroids for 3.5 years and was just diagnosed with osteoporosis. I read the discussions here on Connect and was nervous, too. I had been on Fosamax for 2 years, but it didn’t help. I spoke with my endocrinologist this week and he, too, wants me to start Reclast. When i brought up the side effects, he said that he’s been prescribing Reclast for 20 years with only about 5 complaints. I trust this doctor so I’m going to start Reclast this month.
Is your doctor treating the pain in your knee and hip?

@ bjbnavy1234 That's a big decision but I just had my 2nd dose and have no side effects .Only while I was getting the infusion I had a very light headache but it left as quick as it came. Have you had a dexascan to see if your a candidate fir this yet? You didn't mention it so thought I'd ask this will tell you if you need reclast.Im not doubting your oncologist but thought I'd ask it might just be arthritis? I wish you luck 🙏for you,very already, gone through alot already.

I’m getting back surgery, they Rx’d Reclast injections- anyone have experience and side effects?

Hello @jennd63 and welcome to Mayo Clinic Connect. Because you are interested in hearing from others on Reclast injections, I have moved your post into an existing discussion on this same topic.

Members like @lioness71 and @becsbuddy have both recently been in the discussion and may be able to share some information with you.

When is your back surgery?