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Pre-transplant: GFR 21 Creatinine 2.2 NO Symptoms!
Transplants | Last Active: Feb 24, 2022 | Replies (31)Comment receiving replies
What a blessing and loving gift from your daughter! After speaking with my pre- transplant team and surgeon, I can now understand how my recovery from the surgery itself, transplant success, and my longevity will all be better if I'm lucky enough to receive a kidney while I still feel as strong as I do. I'm working through letting potential donors make their offer (even if I worry for them and what I perceive as their best interests), my last hurdle I think will be getting comfortable with a transplant induced compromise of my immunity strength in a world so impacted as it is with this pandemic. Any words of comfort or encouragement regarding that would be most appreciated! Wanting to be able to use my expected enhanced energy in more (safe) social settings!
Replies to "What a blessing and loving gift from your daughter! After speaking with my pre- transplant team..."
@katyrae A pre-emptive kidney transplant is usually handled better by your body when it has better resources to recover, if you can get a living donor like you are aiming for. Kidney disease is so danged sneaky, and even though you are feeling fine, it quietly brings you and your defenses down. Once you have your transplant, we'll have to tie you down, you'll feel so good!
As others have said, there are so many things to consider as you journey to your transplant. I surely do hope your potential donors are able to get through the testing, resulting in a great match for you. If it doesn't happen, once you are below 20% you can be listed for transplant, and start that clock ticking. For me, I am an active cancer patient, so transplant is out of the question. And, if you donor is not compatible with you, there is also the opportunity for a paired donation, where they donate to someone, and you get a kidney too https://www.mayoclinic.org/departments-centers/paired-donation/overview/ovc-20508454
I'll be looking for your story!
Ginger
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I can tell you that you should let the donor make the decision. During the pretesting the donor will be given many opportunities to be sure about their decision. My husband and I could not go to any of my daughter’s appointments because they wanted to make sure that it was what she wanted, without any outside influences. Now is the time to concentrate on taking the best care of you. Yes, having a compromised immune system does make life more tricky, but you will attend classes that will help you learn how to live well, in spite of it. This pandemic can’t go on forever.