Hi @santosha

The trouble with providing the length of time they last is that they cluster together. For instance, which was a doozy, my husband was on the line with 911 for 11 minutes. All the while I was in and out, in and out. Then I had another couple while waiting to be seen. My sense of time is very distorted. I had another bad cluster where I lost about 8hours- I remember bits and pieces of the day but not much else, even though I was awake and answering questions the whole time. I know I wasn’t seizuring the whole time but my pupils were dilated and my speech was slurred, couldn’t walk a straight line either. I end up with Todd’s paralysis afterwards every time. It’s a real bummer.
With the first few I was on Topiramate. That was well before diagnosis as I was using it as prophylaxis for migraine disorder. Side effects were wicked bad though. I still think it odd that I was actually on an anti seizure drug before I was diagnosed with epilepsy and yet here I had it the whole time. The dr suspects I’ve had it most of my life but it was sub clinical before the last few years. I actually thought the Topiramate was the cause of the seizures and stopped it but that was me being super hopeful that I would never have another. I hoped that the diagnosis was wrong. I have come to accept it though.
I’m using oxcarbazapine now. It’s not so bad. Seems to have me mostly under control, and while there are side effects I honestly can’t tell if they are because of the drug or because of the diagnosis. I still have horrendous migraines, but I’m doing ok.
I’m pleased to hear that CBD/thc is working for you! It seems to be a big trigger for me. I haven’t touched it in 3 years now. I make a wicked topical pain cream from it though. Dunno where I would be without it!