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Facial Pain - Empty Nose Syndrome

Ear, Nose & Throat (ENT) | Last Active: Sep 4, 2023 | Replies (93)

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@minakh

is empty nose syndrome real thing?

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Replies to "is empty nose syndrome real thing?"

Hello @minakh, welcome to Mayo Connect. I’d never heard of this before so I did some sleuthing. I found some past discussions on Empty Nose Syndrome for you and a link to a youtube video with one of the Mayo experts discussing this syndrome and treatment.
https://connect.mayoclinic.org/discussion/facial-pain-empty-nose-syndrome/


https://www.metrohealth.org/otolaryngology/rhinology/empty-nose-syndrome#:~:text=Empty%20Nose%20Syndrome%20Defined%20Empty%20Nose%20Syndrome%20is,normal%20tissue%2C%20following%20nasal%20surgery%2C%20specifically%20turbinate%20excision.
Were you diagnosed with ENS?

Hi minakh, I add my welcome. I've moved your question to this existing discussion about empty nose syndrome. I did this so you can meet others who live with ENS, like @denisec526 @nrd1 @chris77 @123d @bride @marychickadee and others

You may also be interested in these discussions:
- Empty Nose Syndrome (ENS): Does enlarging turbinates help?: https://connect.mayoclinic.org/discussion/ens-1/
- Vivaer nasal valve remodeling and Empty Nose Syndrome?: https://connect.mayoclinic.org/discussion/vivaer-nasal-valve-remodeling-and-empty-nose-syndrome/

Do you and your doctor suspect you may have empty nose syndrome?

@minakh-the name “empty nose syndrome” is misleading. It has to be thought of more as post surgical nasal dysfunction. But yes, it does exist, just as any other post surgical pain syndrome exists. The reason why this is more bothersome to people than in any other area of the body, is because it is located in your center that you need 24/7 and it is located in the complex cranial nerves, rather than the spinal nerves. It is not rare. It is only “rare” because many ENTs will not acknowledge that they cause any harm and will often send patients who complain, post surgically, to a Neurologist. Without ever acknowledging that the patient has an issue post surgery. So if post surgical complications on not truly reported/tracked then they will always be “rare”. But yes this condition exists just as any other person who undergoes an unnecessary elective surgery and ends up with dysfunction and pain.