1. < Neuropathy
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Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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greenacres | @greenacres | Aug 19, 2021
In reply to @avmcbellar "You’re welcome @greenacres I hope your husband finds the supplements that will offer the help he..." + (show)
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You’re welcome @greenacres I hope your husband finds the supplements that will offer the help he needs to decrease his neuropathy symptoms. I have neuropathy on the left side of my body. I get the numbness, tingling, and burning feeling. I have my right side to tell me what is normal. At times when my left leg felt burning hot I touched it against my right leg and discovered my right leg was warmer. The brain can play games with the mind when the brain doesn’t get the proper signals. Tell her your husband to be careful near a stove or when handling frozen items. He can easily get burns not feeling the appropriate temperatures. I was lucky to have not sustained injuries from handling frozen foods too long with my left hand. Wish you well.

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Thank you @avmcbellar Great advice. Wishing you well too.

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Mary Klimek | @brklimeks | Aug 22, 2021
In reply to @lsatenst1 "I have been diagnosed with poly-neuropathy due to nerve damage caused by arthritis in my lumbar..." + (show)
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I have been diagnosed with poly-neuropathy due to nerve damage caused by arthritis in my lumbar and sacral regions. I’ve taken gabapentin and lyrica both of which make me too tired to be useful, physical therapy,epidural all to no avail. I am pursuing other avenues such as surgery and various other treatments.I like to exercise quite a bit and have been having difficulty doing so.

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SCS implant has been very helpful for me. I cut my gabapentin in half from nine (300mg) pills per day to five. I was told that is pretty good. I’m pleased with the results. Surgery was Feb 2020.

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kolbe55 | @arlenereiss55 | Aug 24, 2021
In reply to @brklimeks "SCS implant has been very helpful for me. I cut my gabapentin in half from nine..." + (show)
Profile picture for Mary Klimek @brklimeks

SCS implant has been very helpful for me. I cut my gabapentin in half from nine (300mg) pills per day to five. I was told that is pretty good. I’m pleased with the results. Surgery was Feb 2020.

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What is an SCS implant?

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Mary Klimek | @brklimeks | Aug 24, 2021
In reply to @arlenereiss55 "What is an SCS implant?" + (show)
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What is an SCS implant?

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Sorry. SCS is a spinal cord stimulator which interrupts the pain signal from affected area to the brain.
https://www.bostonscientific.com/en-US/patients/about-your-device/spinal-cord-stimulator-systems-scs.html

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misselyse7 | @misselyse7 | Aug 24, 2021

I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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John, Volunteer Mentor | @johnbishop | Aug 24, 2021
In reply to @misselyse7 "I have pain constantly gabapentin really doesn’t seem to work I can only stand for a..." + (show)
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I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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Hello @misselyse7, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear you have not found anything that gives you some relief yet. It can be difficult sometimes for all of us with neuropathy. Until other members join in and share what has helped them you may be interested in reading through the posts in the following discussions to learn what others have shared that helps them.

-- Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

The Foundation for Peripheral Neuropathy also has some information you might find helpful - https://www.foundationforpn.org/

Have you discussed your symptoms with your neurologist or doctor to see if they have some suggestions?

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misselyse7 | @misselyse7 | Aug 25, 2021
In reply to @misselyse7 "I have pain constantly gabapentin really doesn’t seem to work I can only stand for a..." + (show)
Profile picture for misselyse7 @misselyse7

I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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Hi it’s misselyse7 I have been diagnosed with small fiber polyneuropathy my feet burn constantly I am also looking for a neurologist in the Atlanta area that is a specialist in this area my neurologist referred me to Emory unfortunately they had terrible reviews and my brain mris are fine my sjogrens test came back in conclusive this is so frustrating and I feel like there is no one to help me I take gabapentin and sometimes it works and sometimes it doesn’t any help would be greatly appreciated

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wilcy | @wilcy | Aug 26, 2021

How much gaba are you taking

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adam365 | @adam365 | Aug 26, 2021
In reply to @misselyse7 "Hi it’s misselyse7 I have been diagnosed with small fiber polyneuropathy my feet burn constantly I..." + (show)
Profile picture for misselyse7 @misselyse7

Hi it’s misselyse7 I have been diagnosed with small fiber polyneuropathy my feet burn constantly I am also looking for a neurologist in the Atlanta area that is a specialist in this area my neurologist referred me to Emory unfortunately they had terrible reviews and my brain mris are fine my sjogrens test came back in conclusive this is so frustrating and I feel like there is no one to help me I take gabapentin and sometimes it works and sometimes it doesn’t any help would be greatly appreciated

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Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes me be more social plus cured my depression. I have taken it for tens years.

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1luckyguy | @1luckyguy | Aug 27, 2021
In reply to @adam365 "Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes..." + (show)
Profile picture for adam365 @adam365

Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes me be more social plus cured my depression. I have taken it for tens years.

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Thank you..I will try this...

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