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Please Share your MAC and Bronch Success Stories - However Small

MAC & Bronchiectasis | Last Active: Apr 22 1:49pm | Replies (66)
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@hydrang3a

Interesting. I was on Azithro, Rifabin, and ethanbutol for 18 months finished two years ago. M.intercellular was killed.😀However the cavity was not closed and I became very ill with m. Abscessis in June Now on daily IV’s of Amikacin, Nuzyra and Imipenem as well as oral Clogazamine all for 6 months. Will have surgery at NJH in Denver to remove cavity in October. This is tough. Has anyone else gone through this treatment? I’m trying to stay positive and I am thankful for my doctor at NJH for knowing how to handle this awful disease.

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Replies to "Interesting. I was on Azithro, Rifabin, and ethanbutol for 18 months finished two years ago. M.intercellular..."
cmi | @cmi | Sep 18, 2021

Hydrang3a…by any chance do you know the measurement of your cavity? I ask because…presently off the cocktail of big 3 after 6 mths because of side effects. However it seems my cavity grew 6-7-8 mm now after 11 months. NJH was okay me going off meds for now because my bronchiectasis is mild, & I am asymptomatic except for occasional fatigue, SOB, or pain in ribs…I have no sputum to produce any cultures to lab. My ID doc is concerned about cavity growing. What did NJH pose to you as requirement size to remove the cavity? I repeat Scan this Nov. to remeasure size and thus begins the doctors debate. Anyone else with cavity size information or procedure?Thanks
Regina

P.S. could not be more proud of this amazing group of health/diet warriors👏🏼👏🏼👏🏼

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