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Acute Myeloid Leukemia with Aberrant CD7

Blood Cancers & Disorders | Last Active: Dec 22, 2021 | Replies (41)

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@loribmt

@lodi Good morning Lorraine, by my reckoning it’s Richard’s last day of conditioning. How’s he coping with the chemo? I hope he’s not having too much nausea but I’m sure he’s getting tired. It’s more powerful than the chemo he’s been on in his AML journey.
But it’s doing the job of cleaning everything out of his marrow, making room for those new stem cells arriving in 2 days! They’ll have a nice new home to nestle into and take up residency to protect him for the rest of his life!
I had 2 lines of thought when I had my infusion of cells. The first was like little Minions infiltrating my body. Did you see the movie Despicable Me? Anyway, they are fun little characters and I’d laugh when I thought of them taking over.
In reality, they’re more like a united force of Imperial storm troopers!! Glad they are on my side! My husband chose to go with a military analogy. Oh well, whatever, I do have a new army at guard in my body.
LOL. Anyway, maybe your husband can come up with his own analogy for his new defense team.
It helps to think about what’s going on inside the body as the cells infiltrate his bones and settle into their new surroundings. It will take about 10-14 days before they set up housekeeping and get down to business making white blood cells again. (Engraftment) Then Richard will start feeling better. It’s going to be a long 2 weeks in between. He’ll be tired. He needs to expect that and not to fight resting.
How are YOU holding up??

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Replies to "@lodi Good morning Lorraine, by my reckoning it’s Richard’s last day of conditioning. How’s he coping..."

@lodi Just checking in and giving both you and your husband virtual hugs. If everything is on track he’ll be entering the nadir period after all of his chemo/conditioning. This is a very difficult few days for most stem cell transplant patients. Do your best to encourage him through this. It can be very challenging with mouth sores, nausea and reactions to medications during this time. He needs to let his team know of any discomfort he is having. They’ll do their best to alleviate his symptoms the best they can. There are meds for all of it!!
Then miraculously, between 10 and 14 days, he’ll be doing much better as his new cells engraft and white blood cells charge to the rescue!

You two are in my thoughts daily as I send positive thoughts of strength and courage for both of you. Lori