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Hi Samson, welcome to Mayo Clinic Connect. I'm sure Carol @cb772 will be delighted to meet you.

While I'm happy you found us, I'm sorry that you are dealing with so many debilitating issues related to disseminated intravascular coagulation (DIC). How long ago was your surgery and symptoms started? Have they been able to determine the underlying cause and treat it?

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Replies to "Hi Samson, welcome to Mayo Clinic Connect. I'm sure Carol @cb772 will be delighted to meet..."

Hi Colleen, it was 2016 after routine surgery. When I woke in recovery I knew there was something not right, I had tachycardia, low B/P, I felt dizzy and short of breath. I wasnt brought back to the OR until 8 hours later, when my B/P dropped to 60/35, and I asked the nurse to call a CODE as I was clinically dead. 13 hours of surgery later, I woke in the ICU, and could not believe I was alive and survived.
Since then, Ive had shortness of breath, fatigue, weakness, mental fogginess, word recall issues, anxiety, bouts of depression, short term memory loss. I cant do the things I could before, had to sell my motorbike, cant kiteboard anymore, Ive recently left my profession.
Ive been looking for any research on long term effects of DIC on people, what vascular damage does DIC leave, what does the microvascular and macrovascular damage cause in the long term, what are the risks of getting DIC again if my body perceives another episode of trauma, how do I know if I have permanent cardiac damage, vascular damage, respiratory damage and also where does Covid 19 fit into the vascular effects of Covid 19 and people who have had DIC and the vascular damage from DIC. I have so many questions that i cannot find answers. Thank you for the opportunity to talk about this.