Mouth irritation and sensitivity with autoimmune diseases

Posted by ktgirl @ktgirl, Aug 16, 2021

I'm wondering if anyone else has a sensitivity to anything like fruit or even potatoes. I have Sjögren's syndrome and RA and scleroderma. The inside of my lips are very sore and my mouth is extremely dry. I use oracoat lozenges at night and sip water all day. I also have zyligel by Oracoat. My dentist gave me some packets of a rinse called rincinol. Any other suggestions? I can't eat anything that is hard or crunchy like crackers or chips. It's hard to find anything that I can eat.

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Thanks I will check it out.

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I also have the dry eyes, mouth and even nose but lately the dry mouth wakes me up at night with the feeling I have not a drop of saliva in my mouth. I rinse with Act but does nothing. I go back to sleep and wake up again
Is it worse at night for everyone ?
I am wondering now if I also have some sort of allergy. My nose feels stuffy and dry and I feel I can’t breath through the nose. Lips are super dry
I am applying petroleum jelly since lip balms don’t help
One other thing nothing to do with health
I think Lori asked about my user name
My user name kenyalama is the combination of the first two letters of my grandkids names whom I adore and I am no longer able to take them to museums, movies etc as I used to due part to my health issues and part to the pandemia. It makes me sad BUT
It’s 7:25 in the morning and I will try to not start my day with the blues
So heading to make coffee in my wheelchair
Still live by myself
Got my booster shot yesterday
I encourage everyone with autoimmune to get the booster!
Stay safe !

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Correction: it is pandemic and not pandemia ( the latter is in Spanish )
I am bilingual jaja

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I am on hydroxychloriquine and it is helping with my sinus, ear, and throat pain and soreness and swelling. 400 mg a day but it takes a long time to get results.

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@kenyalama

I also have the dry eyes, mouth and even nose but lately the dry mouth wakes me up at night with the feeling I have not a drop of saliva in my mouth. I rinse with Act but does nothing. I go back to sleep and wake up again
Is it worse at night for everyone ?
I am wondering now if I also have some sort of allergy. My nose feels stuffy and dry and I feel I can’t breath through the nose. Lips are super dry
I am applying petroleum jelly since lip balms don’t help
One other thing nothing to do with health
I think Lori asked about my user name
My user name kenyalama is the combination of the first two letters of my grandkids names whom I adore and I am no longer able to take them to museums, movies etc as I used to due part to my health issues and part to the pandemia. It makes me sad BUT
It’s 7:25 in the morning and I will try to not start my day with the blues
So heading to make coffee in my wheelchair
Still live by myself
Got my booster shot yesterday
I encourage everyone with autoimmune to get the booster!
Stay safe !

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Hello kenyalama. My name is Yolanda and I have dry mouth as well and a dry and bloody/stuffy nose everyday. I use the TheraBreath Dry Mouth lozenges. They have a nice flavor and I have one or two before bed while I'm watching the night news. Honestly though, I still wake up at night with a dry mouth after being able to sleep more than three hours...... I know the frustration you must be having with the dry mouth (I keep a bottle of water by my bedside as well)..... I have my grandchildren too but like you, I can't go out and enjoy them AND THE SUN. I've got an immune skin thing that attacks myself as if it were bad. I have Bullous Pemphigoid. Not as bad as the pictures show because I try my hardest to stay on top of this stupid disease. Like you too, I try not to be blue and the feeling of being alone in this fight for the past year and a half. It's funny but I just received my third dose of Moderna on the 13th and I feel so happy. I got a real reaction with a mild fever! I know it sounds funny but my first two gave me no reactions whatsoever - proof was in my latest blood tests showing no antibodies detected (probably and most likely from me taking prednisone for my blisters....). Well my friend, I hope this little letter lets you know you're not alone in this stupid fight (AND DURING A PANDEMIC TOO)! They weren't kidding when they said 'we're in this together'....

Stay safe and stay well,

Con Cariño, Yolanda

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@yolanda53

Hello kenyalama. My name is Yolanda and I have dry mouth as well and a dry and bloody/stuffy nose everyday. I use the TheraBreath Dry Mouth lozenges. They have a nice flavor and I have one or two before bed while I'm watching the night news. Honestly though, I still wake up at night with a dry mouth after being able to sleep more than three hours...... I know the frustration you must be having with the dry mouth (I keep a bottle of water by my bedside as well)..... I have my grandchildren too but like you, I can't go out and enjoy them AND THE SUN. I've got an immune skin thing that attacks myself as if it were bad. I have Bullous Pemphigoid. Not as bad as the pictures show because I try my hardest to stay on top of this stupid disease. Like you too, I try not to be blue and the feeling of being alone in this fight for the past year and a half. It's funny but I just received my third dose of Moderna on the 13th and I feel so happy. I got a real reaction with a mild fever! I know it sounds funny but my first two gave me no reactions whatsoever - proof was in my latest blood tests showing no antibodies detected (probably and most likely from me taking prednisone for my blisters....). Well my friend, I hope this little letter lets you know you're not alone in this stupid fight (AND DURING A PANDEMIC TOO)! They weren't kidding when they said 'we're in this together'....

Stay safe and stay well,

Con Cariño, Yolanda

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Thank you for your response Yolanda!
Except for the losengez I do what you do. Water on night stand and all. Not to much more to be done. I don’t comment about this with anyone because people woukd never understand that dryness could cause so much suffering and like so many of us we deal with so much more.
And yes we will keep our heads up dear new friend
Wishing you a more hydrated night tonight with less interruptions

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Thank you Cheryl.
I am not sure my rheumatologist would want to add Plaquenil ( I think it’s the commercial name ? ) to the Humira and methotrexate I am already on but I will ask
So glad that helps you!
Take care !

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@kenyalama

Thank you for your response Yolanda!
Except for the losengez I do what you do. Water on night stand and all. Not to much more to be done. I don’t comment about this with anyone because people woukd never understand that dryness could cause so much suffering and like so many of us we deal with so much more.
And yes we will keep our heads up dear new friend
Wishing you a more hydrated night tonight with less interruptions

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You as well my friend! Keep in touch -should you find something that really works and I’ll do the same as well! Stay safe!

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@yolanda53

You as well my friend! Keep in touch -should you find something that really works and I’ll do the same as well! Stay safe!

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I have UCTD and a couple others. My dentist comments on the precarious state of my teeth due to dry mouth.
Suggested I use a gel for oral dryness, better than mouthwash which she suggested the first time. Biotene.
I found a store brand of gel, same ingredients, much less expensive.
CVS dry mouth gel.
Not perfect but lasts longer.
I know about waking up, water sips, too!
Exhausting.
I understand and wish you the best!

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