← Return to Living with Parkinson's Disease - Meet others & come say hi

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@hopeful33250

So good to hear from you @marilyjoan! I am sorry to hear that you are also dealing with PMR and GCA. That is quite a combination of problems.

I also just love Dance for Parkinson's! Before the pandemic, I used to go to an in-person class but now have to rely on DVDs or using Youtube videos. Are you going to an in-person class now?

I'm wondering if your problem with meds is the off-time you are experiencing. I found that Stalevo gives me greater coverage. It is basically carbidopa/levodopa with entacapone. The entacapone helps the carbidopa/levodopa stay in the brain longer. I suppose you have tried this med already?

Glad to hear that you have a PD support group. The first few years after diagnosis I went to them religiously. As I'm now more involved with Connect I don't go regularly but they were so helpful to start with. I learned that I wasn't the only one struggling.

Since you've been dealing with PD since 2016 you must feel really experienced by now. What is your most bothersome symptom of PD?

I look forward to hearing from you again. Will you post an update?

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Replies to "So good to hear from you @marilyjoan! I am sorry to hear that you are also..."

Hello again, the most bothersome symptom is off times, tremor is in all parts of my body. I haven’t seen my neurologist properly since the pandemic started so hopefully next week I will and he will give me a solution.