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Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)
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@marilynjoan

I am currently taking levodopa 100/25 at a rate of 4.5 pills a day. I have tried a couple of other prescriptions to try and level out the uptake and duration of the levodopa. No luck with that and that is why I was prescribed the Rasagiline. I am currently not exercising as much as I need to, due to coming down with PMR and GCA. I have been on struggle with this since January 2021. However Dance for Parkinson is a lot of fun on a weekly basis and I was daily walking with Lesley Sansone. I also was early morning walking for about 40 minutes weather permitting. I am in Canada and also belong to a Parkinson support group and I know for sure medication is different for every one of us. I was diagnosed with Parkinson’s in December 2016…Cheers…Marilyn

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Replies to "I am currently taking levodopa 100/25 at a rate of 4.5 pills a day. I have..."
Teresa, Volunteer Mentor | @hopeful33250 | Aug 22, 2021

So good to hear from you @marilyjoan! I am sorry to hear that you are also dealing with PMR and GCA. That is quite a combination of problems.

I also just love Dance for Parkinson's! Before the pandemic, I used to go to an in-person class but now have to rely on DVDs or using Youtube videos. Are you going to an in-person class now?

I'm wondering if your problem with meds is the off-time you are experiencing. I found that Stalevo gives me greater coverage. It is basically carbidopa/levodopa with entacapone. The entacapone helps the carbidopa/levodopa stay in the brain longer. I suppose you have tried this med already?

Glad to hear that you have a PD support group. The first few years after diagnosis I went to them religiously. As I'm now more involved with Connect I don't go regularly but they were so helpful to start with. I learned that I wasn't the only one struggling.

Since you've been dealing with PD since 2016 you must feel really experienced by now. What is your most bothersome symptom of PD?

I look forward to hearing from you again. Will you post an update?

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