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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi Luann...im glad I'm not finally losing it!!! I have thought of cutting my toes off many times!!! Never experienced pain like it. I have had neuropathy for many years but just numbness for years. Over the past several years pain and burning has entered the picture. I am taking Gabapentin 1800mg daily. Many years on tramadol,but my pain doctor has decided I need to come off of that. I have been weaning myself off and of course the neuropathy pain has increased greatly. I also take klonopin .5 mg Which I am also wanting to stop. I am trying many things. Right now have found a little relief with voltaren cream and cbd cream,on my toes and burning areas. Also using ibuprofen and Tylenol. The pain,has altered my life...not for the best to say the least. It is so difficult to know what to do. My neurologist want me to start Cymbalta ...my thoughts are why bother If It won't help me. I live in the flirida panhandle and have toyed with the idea of going to the mayo clinic in Jacksonville. Let's stay in touch ..it us so good to share information. Cathy
Replies to "Hi Luann...im glad I'm not finally losing it!!! I have thought of cutting my toes off..."
I too have painful neuropathy in my feet. I was on 3600 mg of gabapentin and Cymbalta. Wanted to use marijuana so doctor took me off both. Long story short I ended up in a psychiatric hospital with suicidality. MJ didn’t work for me. I ended up getting a spinal cord stimulator which greatly helped. Just found out after 20+ years of meds I have stage 3 chronic kidney disease. I was doing well with healty eating but now I’m soothing myself with food. I feel like a hamster on a wheel. Aargh!
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Hi Cathy’
Wow- we have a lot in common. So… I see a neurologist at Yale. Basically, he has just slowly increased the gabapentin to now I’m at the max- I will say if I miss a dose or am late, I can feel it as a nasty reminder so I guess it helps. I worry about what it is doing to my brain. He also put me on 30 mg Cymbalta. It is supposed to help? Maybe with anxiety and depression.
He also prescribed Tramadol, as needed. I’ve been taking it lately every day in the afternoon and again at night. Doesn’t seem to do much but no luck with Aleve or Advil. I got my medical marijuana card and have been using a the/Cbd blend at night. That helps some to allow distraction and some dulling of the general pain. Also my daughter who is a nurse told me about Voltarex cream - helps some. But nothing touches the toes. The ice pick pain is awful as you know! I wish I had Novocain to stick in there! I tried lidocaine cream - nothing. I’ve asked for an mri but neurologist says it won’t show anything. Wonder if there’s something in my lower spine putting pressure on nerves but he doesn’t buy it.
If I had a Mayo Clinic near me, I’d go.
Has yours traveled up your legs? Mine is starting …
Yes! Let’s keep in touch! I finally found someone who understands!
If you don’t have this, you have no idea!
Luann