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Anyone shut down their kidney dialysis fistula after transplant?

Transplants | Last Active: Dec 18, 2022 | Replies (23)
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@hello1234

Hi @gingerw My nephrologist wanted me to do PD at home but I was too concerned that I may not be able to do it so I had a hemodialysis fistula created. One week before dialysis was going to start I received a call from HEAVEN (aka MAYO Clinic JACKSONVILLE) at 2am telling me they had a match! How was your husband's experience with PD? How long did it take him to get used to the process? Did he run into problems or was it easy once he learned what to do? Was he able to sleep through it? My cousin needs dialysis and I would like to give her some advice from someone that actually did PD for a few years. I hope your husband's transplant experience was a successful one and all is well with him.

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Replies to "Hi @gingerw My nephrologist wanted me to do PD at home but I was too concerned..."
Ginger, Volunteer Mentor | @gingerw | Aug 21, 2021

@hello1234 My husband chose to go with PD. He never had any issues until a month before transplant when he ended up with diverticulitis, and in the ER a tech pulled a sample of his peritoneal fluid, but it was a "dirty" catch. He ended up with an infection, and was put on antibiotics. In those two weeks, he was called twice for transplant, but couldn't. Two weeks after he ended antibiotics, he was called and got his new kidney! He slept well, after he figured out where to place the machine for minimal noise interruption [in the closet!]. He even went on long motorcycle trips carrying his machine, camping out in the desert using solar powered batteries to run the machine at night, cross-country business trips. His medical supplier [Baxter] went very responsive to drop-ship the solution wherever he needed them to.

You can go to this discussion post, and read from there. Lots of information on dialysis. https://connect.mayoclinic.org/discussion/dialysis/
Also, look at Mayo Clinic's information on hemodialysis https://www.mayoclinic.org/tests-procedures/hemodialysis/about/pac-20384824 and on peritoneal dialysis https://www.mayoclinic.org/tests-procedures/peritoneal-dialysis/about/pac-20384725
Lastly rsnhope.org offers a bunch of information about kidney disease and different procedures.

Let me know if I can be of further assistance for your cousin?
Ginger

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