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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Who coughs up blood, hemoptysis...I need to know how to handle this. I went to er twice, but don't bother now, seems to stop on its own, but need to hear others stories. Just to scary, afraid to travel. Did big 3, but can no longer tolerate pills, wiped out my bowels, rashes, hair thinning, eyesight reduced tinnitus, extreme weight loss, too tired to get up, although I did,( have big dog) Every symptom. Honestly, I was trying to die, even considered trying to get pneumonia!! It is just no way to live. So now, no pills, nebulizer and exercise, but I cough up blood and it is terrtifying. It is rare though...
Replies to "Who coughs up blood, hemoptysis...I need to know how to handle this. I went to er..."
Thanks Lisa, it is great to know that these worked, I hope it works for many on here, if anyone needs advice on the Amakacin please just ask me.Heather
@windwalker Thanks Terri, yes its the staying away that is now the issue, fingers crossed, enjoy that champagne, haha
Good news Heather. I will be seeing an infectious disease doctor next week. Been on the big 3 for one year, one nodule gone, the other is still there. She will be changing my meds next week. Wish me luck, i need it...
@sophie1019 Good luck, I hope all goes well with your infectious disease doc, let us know what meds you change to. Heather
@sophie1019 Good luck Sophie!! One nodule gone, that's a good sign. Keep us posted.
I started on inhaled amikacin this week. So far it seems a lot easier on my body than the iv amikacin thru a pick line. My Dr says I'll be on it for a year. I'm so glad to hear it worked well for you Heather. Big hug for you....Lisa @tutti
Sophie,
Let me know how it goes.
Jo Ann
@tutti Lisa I found the inhaled amakacin pretty much problem free, just lost my voice at the beginning and had a bit more mucus while on. it.If you lose your voice or have any problems let me know. Hope it goes as well for you. Hugs Heather
Will do..
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@heathert Heather that is great news! Gives us all hope. I am raising my pretend glass of champagne to you, and here's to staying clear!