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@avmcbellar

@bmont Did you finally get answers from the infectious disease physician? Was the initial thought that you had an ulcer?
I will be happy to share what I do that I found to be helpful.
The key is not to overload your stomach with food since there is a delay in digestion. I select foods that are easier to digest like plain yogurt, thick soups, and smoothies. I do take longer to chew foods. I eat frequent small meals(5). My main meals i.e. breakfast, lunch, and dinner are no more than 1.5 cups each. I avoid too much water in meals because water can make you feel full. I do drink in between to keep hydrated. I like to make my own foods for content control ( and maintain a low carb diet) including plain yogurt and dough for rolls and pizza. I found eating freshly made plain yogurt is not sour as the store bought. Yogurt is easier to digest because it doesn’t contain sugar. The added bacteria in the milk consumes the sugar for reproduction to become yogurt. I also eat boiled eggs. At times I make vegan desserts to keep my cholesterol level low. I limit fatty foods in a meal because fats tend to stay in your stomach longer. For pizza I use very little cheese. For peanut butter I use PB2, the powdered form without the oil. I try to make digestion easier on my body. For me I found chewing gum helpful too. I should add I eat mainly a plant based diet. I always have so that was not a big change for me.
I know this is a lot of information for changes. I included a few. Don’t be afraid to ask if you need more information. As you can see it is not easy to manage gastroparesis. My motivation is to feel better and avoid other health issues that may arise from gastroparesis. In other words, I try to have a better quality of life. I hope this is helpful to you. I learned all this on my own. A few years ago I was suspicious when some of the routine lab results were not my normal. The physician did not pick up on that because the results were within range but at the very end of the range. That was odd to me but now I know why. Next year I should have better lab results according to my normal. Wish you all the best.

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Replies to "@bmont Did you finally get answers from the infectious disease physician? Was the initial thought that..."

That's all great information. Thank you. I will try to use a lot of those ideas to see how my body responds.

The team I have in place is FINALLY a good one. It is very slow. I think the pointers are all towards either a bacteria or parasite. It looks like I am destined for a fine needle aspiration of lymphatic tissue to isolate the infection. Hopefully, we get a final answer. Another two appointments coming up next week. We'll see what happens.

In the meantime, I cannot stress how important it is for everyone to 'take care of your gut'. It contributes immensely to the immune system and the healing process in so many different conditions. As we refine diets and the volume of intake, you can literally shift the balance in your favor and combat symptoms in a significant way.

Thank you again with being open with everything that has worked out for you. Saves me a lot of effort trying to 'figure things out' on my own.