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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)

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@lynniecat

I am wondering if I have this, Started a year ago - woke up at 5 is, with debilitating pain in the back of my throat, under jaw, neck and face (cheek area shooting to ear, Could not move - lasted 10 minutes then slowly faded. I have had 15 attacks, Docs are doing a variety of test. It’s the strangest thing,

If I catch it at the start and slowly drink water with consistent swallows - maybe 10 to 20 swallows - then I usually can get the neck and throat pain to fade. It will come back but I use the trick again. If it starts up in the night - I just have to suffer though. The attacks last 2 minutes to 2 hours.
I’m curious to hear of if it sounds like GN

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Replies to "I am wondering if I have this, Started a year ago - woke up at 5..."

Hi Lynn, I'm bringing your post to the attention of @eastmas1 @stacybf @ladylove1962, who have been diagnosed with Eagles syndrome.

Naturally, we can't give a diagnosis. You can read more about this condition here: https://rarediseases.info.nih.gov/diseases/9401/eagle-syndrome

Have you brought up Eagles syndrome in your discussion with your doctors?