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← Return to Transplant: tongue blisters
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@loribmt thank you for all your excellent advice!. (I thought you may have some dental education since you are so knowledgeable). I go to the dentist every 3 months for my cleanings. Hopefully, this event will be long gone before my upcoming appointment. If not, I will definitely make an appointment. Do you think the dentist or my nephrologist would be best? If it's a side effect from Cellcept or Tac, I assume my doc would like best. But I really think it's probably a benign reaction to something I ate or I irritated my tongue. I am on the road this week and I brought a travel size toothpaste that's a different brand than my normal brand. I think maybe it irritated my tongue. Maybe it's too old and the ingredients expired. Again, thank you @loribmt and @rosemarya for always being there for me!
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Well, my crazy transplant team joke about wanting to be told if I have a hangnail that doesn’t look right…they want to know first! LOL. But mine are more concerned with Graft Vs Host Disease which isn’t a concern for your transplant.
So you could just drop a note on your patient portal to your transplant team. They document these little items to tuck away for later. It provides them a baseline/timeline at least for when and what.
You can also just keep a little diary of items like this that come up with dates, changes, what might have caused the reaction, that type of thing.
Since this seems like minor irritation, in my opinion I’d just do a wait and see. Since you visit your dentist regularly every three months you could wait and just bring it up then. Certainly if things don’t improve or become worse such as inflamed, extremely sore…then just tell your team and still go to the dentist. I found that my team works closely with any of my medical providers back home.