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← Return to Transplant: tongue blisters
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Hi @loribmt I think you are a genius and should have gone to medical school with all of your diagnostic skills! I think you may be correct about the irritated taste buds. It's a little patch on the top of my tongue in the front. It doesn't hurt unless I am eating something a little hot or spicy, it hasn't spread and it seems to be improving. I think I will take a deep breath and calm myself. If it does spread or become painful I will definitely call my transplant team. Thank you so much for calming me!... I have a question. After one year, when you are transitioned to your local nephrologist or hepatologist, when should you call the Transplant Team for questions? Which questions go to your local doctor and which go to transplant? How do you decide? Thank you again Lori for always being there for me!!!
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Genius is maybe a bit too big for me to handle. 😂 But I’m happy that I can help ease your fears a bit. I have a great deal of dental education behind me and now a lot of education by immersion in the world of AML and stem cell transplants.
While I didn’t have a liver or kidney transplant, we do share a few of the same medications. But our needs might differ with when to call on the transplant team. @rosemarya gave you some great information more current for your situation.
As for your tongue. It could be a little patch of what’s called geographic tongue. Sounds awful but it’s benign, harmless, usually painless and generally goes away on its own. For the first time ever, I’m dealing with that right now. Doesn’t hurt at all but I felt an area on my tongue a couple weeks ago that didn’t feel normal.
At first I thought I must have bitten the side of my tongue in my sleep but that would have hurt! LOL It’s sensitive to acidic or salty foods. It’s been 3 weeks it’s now disappearing with no help from me. So I just avoid anything that irritates my tongue, rinse my mouth well after brushing so the toothpaste doesn’t irritate my mouth. And every night after my last brushing for the day I douse my toothbrush with a little 70% alcohol to kill germs. I’ve done that since day one with Chemo/transplant.
And of course, an actual visit to your dentist is your best bet!
Have you had a dental exam since your transplant?