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@johnbishop

Hello @corydeburd, Welcome to Connect. As I read through your post I can see that your thoughts are extremely organized, thorough and you have done a lot of thinking on what is going on in your body. One of the key questions that you listed is what a lot of members have said or at least thought about at one time or another when seeking help for a condition. That question is how do I get physicians to take the problem seriously. One approach is to plan your discussion with your doctor well in advance of your appointment. There is a great website with some tools to help you with that - https://patientrevolution.org/visit-tools. I think most doctors want to help and the more you know about what is going on with your body, the better questions you can ask the doctor and hopefully they can comp up with a diagnosis and treatment plan.

The other thought I have is that there is so much information on the Internet that may or may not be reliable so you really have to do your homework to find reliable sources. There is a discussion on Connect that you might find helpful on how to find reliable health information - How do you identify trustworthy health information?: https://connect.mayoclinic.org/discussion/how-do-you-identify-trustworthy-health-information/

My favorite for finding the latest medical research information is Google Scholar - https://scholar.google.com/

Are your symptoms related to taking the COVID-19 vaccine or having COVID?

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Replies to "Hello @corydeburd, Welcome to Connect. As I read through your post I can see that your..."

Dear @johnbishop, thanks for such a kind & quick reply. I will definitely peruse the sites you mentioned, especially the one on planning doctors' visits as this is something I've been thinking about a lot lately.

My neuropathy symptoms started before receiving a COVID vaccine so I'm confident they're not the root cause. They did flare up again around-ish the time I received my first dose, but my honest inclination is that that was coincidence though I'm not sure. Perhaps a couple weeks after my dose I went from a fairly normal period to a bad one.

However, I've actually received a total of four doses (I was abroad initially & got revaxxed here). For the other 3 I didn't notice anything getting better or worse. & even with the first dose, as I said, you have to stretch the timing a bit to make a connection.

My current thinking after reading this forum is the best name medical science has for this is "post viral neuropathy" as opposed to something more specific, but of course it would be great if my doctor could guide me more.