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Glioblastoma (GBM) trials and therapeutic devices (Optune)

Brain Tumor | Last Active: Jun 5, 2024 | Replies (23)
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@suez5

Thank you so much for the information. I am new to the site and considering Optune. Do you and your husband feel like using Optune was beneficial to his health?

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Replies to "Thank you so much for the information. I am new to the site and considering Optune...."
Colleen Young, Connect Director | @colleenyoung | Aug 15, 2021

Good morning, Sue. I encourage you to read @otis123's story here:
- My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/

Also see this discussion with @marcyprof @bjh369 and @daughterfuturemd
– Glioblastoma (GBM) trials and therapeutic devices (Optune): https://connect.mayoclinic.org/discussion/gbm-trials-ttfields-brain-device/

I just read in your profile bio that this is a very new diagnosis for you and that you just completed proton radiation therapy and chemotherapy. How are you doing today?

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otis123 | @otis123 | Aug 15, 2021

I have to believe it helped him for 10 months when his tumor showed decreases. Unfortunately, nothing seems to keep on working indefinitely. It also is very expensive ($21,000/month) so the insurance companies fight about paying it. They gave us a hard time because Otie was getting Avastin treatments every other week while wearing optune. They want optune to be the only treatment. The good news is that Novocure will work with your financial situation to quote a price that will not go up regardless of what the insurance companies do. Our quote was $250 per month.

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